My son has HS, he is 11 years old. Are there any other parents with kids with HS on this forum?

hi terra! ive had HS for about 7 years now (started when i was 16/17) and have tried everything including multiple surgeries. I felt compelled to answer because I tried doxycycline for almost 8 months with no improvement. the president of the HS foundation is my surgeon and he said that doxycycline is usually ineffective for the treatment of HS. Then I tried clindamycin and rifampin combo, and it worked wonders for me. The biggest side effect I noticed was really bad heartburn if i took it on an empty stomach or if you’ll tried to lay down right after you take it. I always took it about 20 minutes before I went to bed at least. It didnt cure my HS but it made all of my flares inactive. i havent tried tumeric yet but its on my list, as i am trying to avoid being on antibiotics forever. i know you can get it for a pretty affordable price at costco. i also bought CBD oil for 50 dollars and tried it topically as well as orally and noticed no difference, however, did more research only to discover the one i had purchased had hemp oil as a main ingredient instead of cannibis, which is where you see most results. going to be looking for a cannibis based one next! please let me know how the new meds work for your son. rifampin can also cause bodily fluids to be red/orange as a side effect (even tears when you cry, scary!) but i didnt have that side effect too much personally. best of luck and let me know if you have any other questions!

hi

sorry to hear about your son , not a nice thing for anyone of any age.

ive tried that combination of drugs , it worked well for a while but eventually everything came back , my dermatologist now has me on dapsone which is working well. i think sometimes you have to try and at least see before you know.

hope this helps

I don't have a child with HS, but I have had it since I was 12. I’m 32 now and it’s under control. Drugs and creams were never the answer for me. It wasn’t until 2 years ago and I cut out all refined sugar from my diet that HS stopped completely. All the research I’ve done over the years points to a need for diet change. If medication isn’t working try eliminating foods to find out his trigger! I’m a huge advocate in people trying this method. I’m not the only one to cut out sugar, others have found success with wheat, others night shades. I spent far too many years battling this and it was just sugar that whole time!