Posted , 2 users are following.
my son is 8..... for the last 4 years + my little boy has had recurrent chest infections, 5 bouts of pneumonia countless xrays.... bloodtests.... a sweat test... steroids..... and has been treated for Asthma from day one..... I wish it was asthma. Until in February his airways closed and ended up on oxygen/iv antibiotics and again in April....... between these episodes I persuaded my gp to refer him to a different consultant - hopefully someone who would do something..... my main bug bare about the asthma treatment was that it never helped him, neither did the nebulisers -
Thankfully my gp referred him to a consultant from the Royal Brompton and after 2 consultations he has now been diagnosed with Bronchiectasis..... the damage to his lungs is quite obvious even to me having seen the xrays and he goes down hill VERY quickly... before now i have taken him our gp at 6.00pm and been in a&e needing oxygen by 8.30... nothing abnormal could be detected 2 1/2 hours earlier. The poor child suffers with sleepless nights due to the cough and we have got used to him coughing up various amounts of gunk over the course of the day because it has gone on soooooo long..... but why did it take sooooo long to diagnose?????
I have lost count of the times we went to the dr's, emergency dr's and a&e... cant remember the number of times he has been kept in overnight for chest infections... and had to have 10 puffs of his pump every 4 hours knowing it wasnt helping him. I suppose I should be glad that this problem finally has a name but what now?? what do we do, what about the future ????? I look at him and its breaking my heart.
0 likes, 4 replies