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My son was diagnosed with budd chiaris in october of 2004. he is 27 yrs. old. He had to have a liver transplant in december 2004. He is doing fine now, but had a pain in his left hand in june and was hospitalized. They think it was a blood clot. He will be on blood thinners for the rest of his life. Before his transplant they put a shunt in, but it clogged, and thats when they decided to do the transplant because his liver was too far gone after that. The hospital where he was at gave him excellent care, but with a rare disorder it makes me wonder if everything possible is being done. It is so hard to find anyone with this disorder. I would love to hear from anyone with any information on Budd chiari syndrome. Thank-you.
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