my story

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hi i am 23 yers old and having been suffering with achalasia since last july. i have only just been diagnosed. it all started with having to drink wen i ate food and got worse as time went on by christmass i couldnt eat any thong solid and have turned to soup thats all i can it i try to have slim fasts in the morning to put good things into my body but its just boring i have kept stong but since being told what i have its starting to upset me i wake up at least 4 times a night choking i get the foam all the time and and feel so drained i have lost 2st5lbs in 2 months and am scared to have the op i have a meeting with my doc on tue and he will then tell me whats next i feel scared of eating food again even tho i would love to eat something it has effected my every day life but am glad i am not alone as people looked at me strange dor the last few mnths x sad

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  • Posted

    Hi Gemma,

    you are not alone, most of us with achalasia have been where you are at some stage. How have you got on today?

    It is a very frightening condition,but with treatment you will get to eat again.Im six months post op now, (had hellors myotomy with dor fundoplication operation) and eat almost normally,just need a drink of water with stodgy food.

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  • Posted

    o its not till next tuesday thankyou i no ijust hope it gets better thanx for they reply x
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  • Posted

    you are right soup is boring I used to blend everything, spaghetti bologneses, curries, sunday lunch etc and add more liquid, liquid smoothies were good and give nutrients. ice cream is still my favourite (soya cause i dont eat dairy).I used to freeze chocolate and suck on it and bite to give my teeth something to do. lol.its desperate times.

    It can be a very self concious illness.

    you will have loads of questions .ill be glad to help if i can.

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  • Posted

    Hi Gemma

    I am really sorry you have this condition, but you are not alone. I found this forum extremely helpful. I am about 10 weeks post op Hellers myotomy and its the best thing I have ever done. I had never had an op before the Hellers and I was really scared too, but its worth it.

    Take care mate. Like Ellis said, please feel free to ask any questions.

    xx

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