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I was diagnosed with Prostate Cancer in May of 2010. My Gleason score was 9-10 and my PSA was 5.2. I was 66 years old and was not surprised, however I had no indications that anything was wrong. Urinary frequency was normal and I had a good stream. We opted for total removal of the prostate. I done my Kegals and regained control of urinary functions in about 6 months and done very well until four years later my PSA tripled in 3 months. We waited for the next check-up and it tripled again. The Dr. decided that with such a high Gleason score we had better do a radiation treatment. I done 40 of them in September and October of 2014. The only problem was I did leak a bit when I done heavy lifting or or twisting of my lower body. It was suggested that I might have some control issues after radiation treatments were finished. Wow, was that ever true. I simply had no control for a couple of months. I done the Kegal exercises a lot and saw very little difference for at least 6 months. Best I ever got was from 2-5 large mens Pads until the present. Decided to try the AMS-800 implant. I really looked forward to some relief as I was tired of the irritation and soreness and being wet all the time when working. Being a farmer and a rather active man now I was 75 years old. The hospital could not get me in to do the surgery untio late march. Facing planting and haying season too soon I said, "I cannot do that." We will have to try for next winter. We set up an appointment ritht then for early December of 2019 and the surgery was done. I had very little pain from the surgery, in fact. I toon no pain medice that they sent home with me. The discomfort came later. Jan 23 wat to be the day they activated it & like a school kid counting the days till summer vacation, I counted the days until it would be activated and working for me. Went to the appointment and they tried to activate it and the pain was some of the worst I ever had. It felt like they had my testicles in a pair of pliers or Vice-Grips. Re-scheduled the activation day for 4 weeks later to try again. I was still so sore that I declined to try it again and tolerate more discomfort. Surgery was set to move the pump to a different location in my scrotum and was done. Going on 6 months now since this ordeal started and I still have a level of discomfort that I doubt I can tolerate activation yet. I am normally a rather optomistic person, but I am getting a bit discouraged about this thing I have started. What have I done wrong? I am sure this is not normal and I understand that most men get along very well at activation at 6 weeks. I am still looking forward to the life changing thing taking place and I can live a more normal life. I do not want to give up, but I would sure like to see some positive results and less discomfort from having sore testicles from rubbing on the pump. Where do I go from this point. Has anyone else had these issues and if so, what did you do? I also have one more question. When it is activated and the pump is activated to release the cuff, How long does it take to get urine flow? My understanding is that you hold the pump with one hand and pump with the other. If I understand this correctly and the flow does come fast, How do you aim it as I do not have 3 hands??? Any help or shared issues would be deeply appreciated.
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