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It's been a little over a month now since being diagnosed with Mono on 5/3/19. I have been digging through these forums for quite sometime you guys. I've been lurking in the shadows looking for other peoples experiences with mono that match mine. Desperately looking for another story that matches my own in some areas. They seem to be non existent in this area. You see, I started to experience symptoms that prompted me to make my first appointment sometime after April 8th. I made what would be my first appointment soon after. The first doctor tested me for, what seemed to be, everything under the sun.
The tests above are the first series of tests ordered by the first physician I had an appointment with. These tests came back negative. Nothing out of the ordinary. Please bear with me as it may seem like my story is jumping around all over the place. However, I'd like to take you back to when I first started to notice subtle changes. The first subtle change I experienced was shortly before April 6th. I'd say more like late march. I noticed a slight change in my appearance. I looked a little leaner. Slightly... this being despite that my diet had been the absolute same for the last, maybe, two or so years. Everyday I'd eat a tub of cottage cheese upon waking, 15oz of chicken breast for lunch, and either a tub of cottage cheese or five whole eggs and five egg whites. One of the two (for my last meal). Every day, day after day. My profession is very physical and demanding. I work the usual eight hours as an Industrial Mechanic and weight lifted five days of the week. Despite this I never dropped any weight. So, to me, it was alarming when I noticed I started getting slightly leaner. It started playing with my mind a little but I did my best to brush it off as best I could as I still felt completely fine at this point. The weekend came and I had my son with me and my nephew was over. We got ready and I took them out to dinner that evening. As we ate I noticed it was hard to pass the chicken I was eating. This was the second symptom I experienced. As I swallowed the food I felt as if a piece would get lodged in my throat every time. So much so that I'd have to cough to help dislodge the piece of chicken/food that was present in my throat. I said nothing at dinner about it. I'd be lying if I said that I didn't start to put these two symptoms together. Now , my situation was started to get to me at this point more than usual. I carried on the next week hoping that being busy at work would help me forget for a while. After all, I still felt just fine. I was wrong. As lunch came around it was time to eat. I had my usual chicken breast and vegetables. I nuked it and sat down to eat. Lo and behold I had trouble swallowing yet again. This continued for sometime. Theres more. Before the week concluded, I started experiencing this sensation in my head after work. The only way to describe it is a feeling of having a floating head, light headed. Like I had a balloon for a head. If that doesn't make sense I understand. Sometime went by and thats when the fatigue/weakness hit me. It hit hard. The thing is, I experienced more weight loss shortly before the onset of the great fatigue/weakness. The weakness was bad. It took effort to lift my arms. Normal items now took effort to lift. I took my son to the park to try and get my mind off of things despite feeling how I felt. We were there about an hour. Half the time I was sitting on a park bench. The other half I maybe walked around a bit and climbed a hill with a slight incline. Just doing that little activity had me feeling very sleepy. I couldn't take the uncertainty anymore. I booked the appointment and the tests above were ran. Between my first appointment and my second I developed more symptoms. Chills, night sweats, back pain, leg pain. The second Dr. ran more tests. Here they are below:
He ordered the above tests along with and abdominal ultrasound which was normal and a chest x-ray which was normal. Oh, and he also ordered a barium swallow test which came back normal as well. What did come back positive, however, is the Epstein Barr Virus Antibody Panel.
My physician diagnosed me with Mono on 5/3. I had no clue what it was and continued to feel unwell. Still felt fatigue and weakness so I made a phone appointment with another physician. She ordered more test be done. Here they are below:
These tests also came back normal. I'm just very confused and scared at this point. Everywhere I read it seems as if the people that have lost weight due to Mono have done so due to "not eating/not being able to eat" or "throwing everything up".
I haven't Thrown up and I've always had a solid appetite. I've never had a fever or a sore throat or a lot of the classic signs of Mono. It simply doesn't make sense to me. I feel like I'm at the end of my rope. I haven't posted in a while as to not bombard this forum too much. When the nurse weighed me the first time I was seen I weighed 223lbs. This sounds silly but I now weigh around 261lbs but still have doubts. As my appearance seems to have changed. My arms, wrists, and face still feel slim which is confusing and although the fatigue and weakness seem to be a little better than the initial onset. Last week I had a bout of headaches and muscle twitching everyday. This week I seem to be having some sort of reflux. I'm sorry for the long lost you guys/girls. I'm just in doubt and terrified. At the very least I will do my best to mot venture outside of this forum. This has all gotten to me pretty bad and I can honestly say I've hit an all time low for myself with this whole situation. Again, sorry for the long post. I hope you are all doing well and continue to do well. - JC
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