My struggle with LYME disease

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After three long months, several urgent care visits, and a blood test I finally was diagnosed with Lyme disease. Here were my symptoms and I hope this helps anyone struggling to find out what is wrong with them.

-dry skin

-severe fatigue

-joint pain

-swollen lymph nodes

-sore throat

-flu/cold symptoms

-extreme thirst and pregnant woman hunger

-weight loss

-dementia

-dry hair

-dizzy

-vaginal infections

-anxiety

-list goes on and on

I'm here to tell you YOU are not alone .for a long time my symptoms were so bad that I thought I was dying . I thought I had a deadly disease that no one could figure out. After finally having blood drawn and after being test for literally everything I came it positive for Lyme disease. This illness can be mistaken for arthritis, or hyper/hypo thyroidism and also mononucleosis . I thought for sure I was having thyroid issues as it runs in my family and the symptoms are almost identical. Do not get misdiagnosed . LYME disease is a pain and has been brought up much .but u do not want to have this .itll even make u crazy. U will even start to have delusions and experience forgetfulness . I really hope this helps someone out there .even the road to recovery has been hard. Good luck

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4 Replies

  • Posted

    What treatment are you being given? What country are you in? You are lucky getting a diagnosis after 3 months. After 7 years, the first 3 being told it's in my head and the last 4 being treated for hyperthyroidism. I got a positive lyme result from USA and a negative from France although lyme antigens are just .3 under their positive threshold. UK won't agree that i have lyme as they won'taaccept outside results and their tests are crap. Live in Middle East and nobody understands lyme here.
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  • Posted

    I am having tests for Lyme tomorrow. I feel like I have had it for some time, though I didn't know what it was until I did a symptom search and realised I had had the rash and gone downhill rapidly from there. I am really worried that the tests won't give me a diagnosis as I know they aren't very reliable. 

    I have searched the internet for a Lyme specialist in the UK who I can fall back on, should I have a negative result, as I am 99% sure I do have Lyme.

    I am so tired of feeling unwell and extremely fatigued. I am almost bedridden now, with flu-like symptoms around twice a month, getting worse as time goes on. I am sufferring the flu-ish symptoms now and feel awful, together with the emotionally draining aspect of feeling unwell all the time and having no life because of it. 

    I am sufferring all the symptoms you listed. I get so tearful all the time because of the struggle I feel to even get out of bed. I am 32 and I feel like my life is over. I am on antidepressants, which are brilliant, but I still feel desperate and hopeless at times, helpless too because there is no Lyme Disease specialist clinic or hospital in the UK. I think one may be opening soon, but it's so far away.

    As weird as it sounds, I would like a positive result from tomorrow's tests as it would give me some kind of closure in my mind as to what is wrong with me and I can move on, get treatment, etc.

    Thank you for your post, it's nice to know I am not alone. smile

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    • Posted

      Did you get your test back? Hope you are being helped! I could've written your post- my test is next week.
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