MY SYMPTOMS ARE GETTING SO BAD

yes, you absolutely can be tested for MS more than once. because it's a progressive condition, people with MS (PWMS) often find that it can take a prolonged time to get a diagnosis (dx). my advice for anyone with worrying undiagnosed symptoms, of any condition is keep a diary, of any symptoms, start and end dates (if they end) and anything you feel should be recorded. a diary is always helpful when seeing medical professionals. take a list of what you want to discuss, and, if possible, take someone with you to appointments, as a second set of ears is helpful, i've found.

seek out some relaxation exercises, as no medical condition benefits from a stressed patient (esp. MS!) read about 'restless leg sydrome'. is this what is happening to you re: jerks? someone on the ms society website recommended magnesium tablets for it, however, if you take any meds, check that they are ok with magnesium before you try it. i'm being plagued by rest. legs myself recently so i'm trying magnesium, apparently it can take a while to start helping. have you ever tried baclofen for muscle cramps/spasm? it's prescription only, but it's used quite widely by us MSers (yes, thats how lots of us refer to ourselves!) to good effect. if you're not being listened to by your gp, is it possible to see a different one?

i hope you get some answers soon.

wendy x

[list]

[*]Parkinson's disease

[*]Huntington's disease

[*]Wilson's disease

[*]Traumatic brain injury

[*]Birth injury

[*]Stroke

[*]Brain tumor

[*]Paraneoplastic syndromes

[*]Oxygen deprivation

[*]Infections, such as tuberculosis or encephalitis

[*]Reactions to certain medications

[*]Heavy metal or carbon monoxide poisoning

[/list]

I don't know why this list doesn't include MS.  I get cramps in my hands in my feet sometimes in my neck.  If I don't turn my head a certain way it just keeps getting worse until it goes away.  I use to take Baclofin for the cramps.  Now I take Tizanidine.

Every other test for all other Auto Immune Diseases and was in a lot of pain. I only had 3 Lesions and so was told by my Neuro to re-do MRI in 1months. But ... It turned out other MRI's showed up smashed herniated discs, shredded from a workplace injury & my spinal chord was flattened. I had to have Cervical Spinal Fusions, Carple Tunnel Operations but still kept having collapsing instances and other things I couldnt put my finger on. 10 years later working and singing I suddenly had problems with thinking, speaking, talking from office temp feeling hot at 23 degrees. All tests showed nothing, then got Pneumonia and things went downhill, falling and crashing into things saw 4 Neuro's all said I didnt have MS attributed to spinal damage. Then lost all the feeling down right side couldnt walk, was catheterised and in Emergency, took days & still said they didn't know?? I kept telling them it was MS, finally I demanded a Lumbar Puncture which is where they test your spinal fluid for Bands and yes was diagnosed. Im back with original Neurologist who is brilliant and have been told I am in a Category of MS alone which is progressive but still RRMS but hasnt yet been added to the standard Categories which are soon to be increased by at least 2 new categories... Its not about how many lesions you have but the deterioration of the brain from comparing MRI's. There will be a cure, its not far away. Dont give up just move on and change Medical Centres until you get your help and answers.