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my teeth HURT!!

Posted , 11 users are following.

monica45790
monica45790

Does anyone recomend a dentist that can deal with vasculitis caused pain that shoots around the mouth like firecrackers.

0 likes, 13 replies

13 Replies

  • marthatidbit
    marthatidbit monica45790

    Posted

    Monica, I'm very newly diagnosed with PMR & GCA, but I do have a background in the dental field (as an assistant, treatment coordinator and office manager).  I'm pretty sure that if your pain is not caused by actual conditions of your teeth... decay, bite issues, malalignment, abscess, gum disease, etc., a dentist will not be able to help.  I think you will still have to deal with this as a vasculitis symptom.  That has been my experience anyway.  All of my mouth/jaw pain was GCA and not dental connected.  Treating the GCA was what has helped my mouth and jaw pain. 
    • marthatidbit
      marthatidbit

      Posted

      However, I should have suggested a dental check up, just to make sure that you don't have anything truly dental causing your teeth pain!
    • monica45790
      monica45790 marthatidbit

      Posted

      I have vascuitis  triggered by the extraction of three teeth and been on Pred nisone before Methotrexate  I had one big tooth extracted on Friday and would like to think the cause was removed BUT? It feels as if there are firecrackers set off in my mouth as it goes all over and there is no knowing when the pain will come  - or go! Thanks for you messages - appreciated Monica
    • iellen32
      iellen32 marthatidbit

      Posted

      Such a clear and complete explanation you gave to Monica.

      I have GCA.

      Wish you get the expected outcome on the treatment of your PMR and CGA.

      🌺

    • margaret22251
      margaret22251 marthatidbit

      Posted

      I have a bad loose tooth and my dentist will not take it out as i am on pred, is he scared too i wonder, he said it will eventually fall out
  • Guest
    Guest monica45790

    Posted

    I am GCA and had pain with hot/cold on my teeth starting with high levels of pred. Then I lost all sense of taste. Both are still a side effect at 9 mgs of pred. Your symptoms appear a bit different but side effects from pred vary with everyone. I hope some day to taste again and to have no tooth pain!! Hope things improve for you, Ann11195
  • ptolemy
    ptolemy monica45790

    Posted

    I had real dental pain and sensitive teeth when I first started pred. As I reduced it went away though, thank goodness. 
    • monica45790
      monica45790 ptolemy

      Posted

      I have been off Prednisone for some time and now on Methotrexate but the pain does not abate.Want to fine a dentist who can take out the nerve endings!!Many thanks for the message Monica
    • Silver49
      Silver49 ptolemy

      Posted

      I'm finding the same. I never take an injection as I have a high pain threshold. My dentist gave me a prescription for toothpaste for the sensitivity. It helps. I don't think you can buy it over the counter.
    • monica45790
      monica45790 Silver49

      Posted

      I will ask about it.I am in Aberta Canada having moved from Cornwall UK 30 years ago.Thanks  Monica
    • EileenH
      EileenH monica45790

      Posted

      There are a couple of Canucks on the forum but none I know of in Alberta - though I don't think you will find any recommendations for dentists in Canada anywhere on a UK-based site I'm afraid. 

      I too had sensitive teeth - but unilke the others at wasn't to do with the pred as it was there before. Sensodyne was the only toothpaste that made any difference. I had a few years where it was very much better, I'd say gone really, but I've had a flare of the vasculitis/PMR over the last few months and it is uncomfortable to eat icecream again  - not that that is going to stop me...

    • monica45790
      monica45790 EileenH

      Posted

      Thanks so much for taking the time to reply.I am seeing the rheumatologist on Wed in Edmonton and will ask to see the university dental ?I know where I can get the nerve endings removed in BC.I have used Sensodyne for 40 yrs but makes do difference at all now.Monica
    • margaret22251
      margaret22251 EileenH

      Posted

      sorry to hear you have not been well Eileen, take care, Regards Mags.smile
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