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I'm pleased I found this forum. I first started getting what my doctor thinks is TN last year. It lasted for 3 months and then it went away. It started again this year (almost exactly a year later) and seemed to come back a lot worse than the first time. I'm sitting here with what feels like little electric shocks shooting up the right side of my face and it aches really bad. The neurologist I saw last year said it probably wasn't TN and more than likely a dental problem. I doubt this because my dentist is very good and she can find nothing wrong with my teeth. I went to her because I thought I had a tooth infection but apparently its common for TN sufferers to think that is the case. I don't think dentists are trained enough to recognise TN. She didn't mention it once as being a possibility and seemed surprised at not being able to find any dental problem. My doctor has arranged for me to see a Maxillo-Facial specialist next week in case the problem is TMJ and I've been taking Tegretol (carbamapezine) twice a day. The tablets usually take away the pain but whenever I try to stop taking them the pain comes back. The worst thing for me about the tablets is the side effects. I'm 63 and work part time teaching basic IT skills for a local charity. I have to talk to people a lot while I'm there, but talking (even smiling) can be painful so its having an impact on my work and sometimes makes me feel irritable. I also feel sluggish and unable to concentrate on anything for long. Another thing I hate about the medication is that when I wake up in the morning I get these throbbing pains on the right side of my face. I then can't get back to sleep (even if its 4am in the morning!) because these pains are so intense. It's usually when I'm on the borderline between waking and sleeping that is the worst time. I'm actually afraid of going to sleep sometimes and usually put off doing so till the last minute. Does anybody else get these side effects with Tegretol?
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