1. Community
  2. Bones, joints and muscles
  3. Polymyalgia Rheumatica and GCA

My two sister and I have all been diagnosed with PMR.

Posted , 15 users are following.

rrobinson75
rrobinson75

My older sister was diagnosed ten years ago, and is totally over it, I was diagnosed in 2015 and am down to 3 mg of prednisone daily.  Just last October my other sister was diagnosed.  She has had a terrible time.  She was visiting me and had a terrible attack where she couldn’t walk, couldn’t get off the toilet, had terrible pain in her knees.  She ended up going to the hospital and they upped her prednisone to 20 mg daily.  Her crap was 33. She has terrible fatigue, as well.  I told her about this forum but she hasn’t joined yet.  Has anyone had this severe a case?

1 like, 22 replies

22 Replies

Prev
  • EileenH
    EileenH rrobinson75

    Posted

    If by " Has anyone had this severe a case?" you mean being unable to get off the toilet, unable to walk up stairs etc - yes, probably quite a few of us! One lady was in bed for nearly a year and had to have ambulance transport to get to hospital appointments.

  • tyler04178
    tyler04178 rrobinson75

    Posted

    How is this diagnosed?
    • tyler04178
      tyler04178 rrobinson75

      Posted

      I see.. ive been having really strange vision problems and my crp and ear are slightly elevated and they are wondering why.
    • EileenH
      EileenH tyler04178

      Posted

      What sort of visual problems - and any other symptoms? How old ar eyou?
  • rrobinson75
    rrobinson75

    Posted

    Thank you for all your helpful comments!  I really appreciate this forum.  And CRP autocorrected to crap😂

  • Babes47
    Babes47 rrobinson75

    Posted

    All these replies are so helpful. I don't feel so alone.

Back to top
Prev

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.