My ulcerative colitis

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Hi guys ,I need some reassurance if possible ,I got diagnosed with ulcerative colitis in 2004 I had asacol I needed to come of the medication which I did successfully my last flare up was 2010 and had a huge does of steroids this settled down and all went back to normal I had a colonoscopy at that time and never felt right after a student carried out the procedure and silly as it sounds I'm sure he let lots of air in while doing the colonoscopy as since then I've suffered with bad wind .In June 2015 I had a hemerroid op and recovered a little but the wind got so bad which I thought was just from before getting worse it now turns out it's a flare up off my colitis sad not been treated for over a year as I put it down to other things mentioned above plus stress as I lost my dad in april 2005 . My crp level was 700 not sure what that really means waiting for appointment now in the nxt few weeks for a flexisigmoidoscopy I'm so scared as I fear they are checking for rectal or colon cancer I'm I right in thinking that ? I'm tired all of tge time I pass wind with blood all of tge time and blood in stools I ache constantly and I feel like giving up please help

Donna x

0 likes, 4 replies

4 Replies

  • Posted

    Hi Donna,

    I think you should just wait for a sigmoidoscopy and avoid stress. I noticed that for me stress is a big, big, big factor in getting a flare. I think for everyone with UC, we should avoid it as much as possible. I know its easy said than done but I try spending time doing things that relax me -- reading, movie, music, social circle, gym, swimming, walking, park, beach, drive around, holiday cottage -- whatever keeps me off stress. And I notice a change in about a week or so. Also, if married, avoid mother-in-law at any cost... :P

  • Posted

    Dear Donna, sorry to hear you suffering from Colitis, I too get lots of gas when I have flare , from reading lots of mat about this horrible condition I have found that it affects each of us differently from being mild to severe it can cause other symptoms especially tiredness and aches to joints, it's the not knowing that plays on our minds, I'm so pleased to hear you are going to have a flexisigmoidoscopy soon, are you on oral meds at the moment, as I used to take Asacol but now use a suppository pentasa every night and I found these helped, please try not worry and let me know how you are x
  • Posted

    Sounds just like classic UC and I believe meds more or less permanently are the only answer at the moment Try not to worry about cancer etc, that will only worsen your flares, go see GP again and I suggest you get back on anti inflammatory meds! Good luck!
  • Posted

    Over 35 years ago I was diagnosed with ulcerative colitis. for 15 years I tried every treatment they had available at that time with little success.  Frequent sigmoidoscopy and colonoscopy procedures showed the deases was progressing. I was given high levels of steroids without much success.  We finally moved to a different state where I went to a new doctor who sent me to the University Hospital where I was operated on because my whole large intestine was full of precancer tissue. The surguery was an illialanal pull through with a J pouch,. There were two surgerys which allowed the J pouch to heal while I wore an illiostomy for several months then they did a take down. After a year of recovery I felt better than I had for more than 15 years.  That was over 20 years ago.  I am now almost 70 years old and living an active healthy live that I never dreamed I would have when I was in my 30s. As hard as it was to work and live with ulcerative colitis I look back on the experience and can honestly say it taught me so many things that today I am grateful for.  Don't be afraid to shop for different doctors.  One of my daughters also went through the same disease and she had the surgery after only one year and was able to have children atter her surgery and play sports. We both feel that the surgery was such a great blessing in our lives.

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