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Myelin Sheath Support does it work?

Posted , 3 users are following.

Krisssy
Krisssy

I have had TN for almost a year and will be seeing a new neurologist at the end of the month.  I am on D3 With K2 which I feel has helped. Recently went on a 5000 mile round trip (driving) out west. I don’t know if it was the altitude or the driving but the pain was excruciating but only while driving or in the hotel room, no pain while hiking or walking around. 

I read about myelin sheath support, has anyone tried that? 

I really do not want to try any of the medications that I hear are horrible and end up not working. 

I was also going to call a dispensary.  

Has anyone had any luck with a dispensary? 

Thank you 

0 likes, 3 replies

3 Replies

  • al07085
    al07085 Krisssy

    Posted

    Hi Krisssy, when you say dispensary I think your talking about legal pot.well it won’t take the pain away but it would probably make it easier to cope with .I have had TN for over ten years and what helps me is gabapentin. Sometimes I’ve gone weeks with no problem and gabapentin has very little side effects maybe a little sleepy that’s all . Last month my TN came back so I went to my doctor and he added Duloxetine dr 30mg. Took about 3 days And i’m In good shape again. Also Itake turmeric (its a vitamin) all has no side effects and is very safe to take...each doctor seems to prescribe something different. That’s why we share experiences on this website. Anyway good luck to you and to all the rest of you people who suffer with this very painful and dreadful thing called TN.
    • Krisssy
      Krisssy al07085

      Posted

      I am taking a Painrx Turmeric also.  
  • linda30391
    linda30391 Krisssy

    Posted

    My husband has suffered from TN for about 10 years. His MRI showed a blood vessel wrapping around his trigeminal nerve.  He was put on prescription after prescription...the only help he ever got was from prednisone ( which is a steroid) but as soon as he stopped it (as that can not be taken very long) his pain came right back.  His pain was atrocious and it interfered with his entire life as sometimes he would have four flare ups a day- other times he would have one.  Some were hours long- others 20 minutes. Sometimes that pack that you heat in the microwave would help lessen the pain!! He did also have the Gamma Knife radiation, too. That helped for about one year and the pain was back.   Out of desperation, as nothing was working, I started looking up natural substitutes for the medications.  I found DONG QUAI ( sold at a health food store) was a natural substitute for prednisone and CURAMIN helps to control pain and inflammation.  After some trial and tribulations with experimenting with a salve called comfrey cream ( a great muscle rub- but did not help the pain of the TN- but still not a wasted purchase so that is good), then we tried spraying on magnesium flakes ( mixed with distilled water)and letting that set on his legs, arms, and stomach one hour every morning to absorb into his system, then we tried a mixture of Organic cayenne pepper and coconut oil mix to rub on the painful area, then DMSO and silver, then Hemp, ( you can tell we were desperate) he tried these two pills three times a day....Dong Quai and Curimin (extra strength) also B12 vitamins daily.  Well lets see, he took them three times a day and I would say within 5 to 7 days he stopped experiencing flare ups.  We proceeded cautiously as, really, who would believe this would help...so not to tell anyone he was getting relief- they would think we are crazy.  But one week went by, two weeks, three weeks...I know I started to relax a little bit.  It has probably been since February or March........no flare ups.  He has cut the pills back to two a day.  He has had blood work two times since he started these pills as he told his doctor what he was taking.  His blood work is coming back fine...actually great.  I hope this will help you and others.  I know one thing can help one person and not another but I know he was suffering and myself right along with him.  Our entire life was controlled by this disease.  If you or five or ten or one hundred people, or more tried this and it helped them as it has my husband, it would be wonderful.  It is a horrible debilitating disease.  No One should suffer and go through what I watched my husband experience.  Good Luck!   Report this

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