Myocarditis/pericarditis advice please!!

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Mainly just looking for some advice if you have any... Here's my story...

I'm 24, sept just gone I had tonsillitis, I started having really bad chest pains I couldn't breath and had a weird pain in my arms, I went into hospital where at first they just thought maybe I was allergic to penicillin, after a number of tests I was transferred to a specialist heart hosp, after all my tests and MRI scan it was confirmed that the tonsillitis had resulted in me having myo and pericarditis, the whole experience was such a shock to me, I wasn't even allowed to walk to the toilet, I was released from hospital after nearly two weeks and have been on pills ever since, I have an MRI check up scan next week and have only really started thinking about the whole thing and realised, I actually don't really know after deal about it, I no what it is and why it happened but I don't actually no if it's a long term thing or if il be okay, if anything in my life will be affected by it. Isit gone? Can it come back? My partner and I would like to start trying for a baby, in the back of my head I'm worrying about all of this. Should it be an issue?!? I'm slightly clueless tbh and would love .... Something, anything, someone to talk to.....

Thanks, and I hope to hear from someone

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4 Replies

  • Posted

    Hello Emma,

    I am a young 68year old lady.

    I was diagnosed with virol Myocarditis in February2013. I am not on any medication, but go for regular MRI scans. The cardiologist said I should not go to the gym or lift anything heavy, it also precludes me from longhaul flights. I occasionally have mild symptomatic attacks, pain in the chest and tiredness afterwards. Because of the anxiety it brings, I downloaded a five step response for panic/anxiety attacks from the internet which helps and for the pain I have taken paracetamol, I believe one can also take ibobrufen or nurofen. Though I guess you would have to be careful with what you take as you are on medication. Rest is also very important. I went on to the British Heart Foundation website and found them very helpful too giving me a link to The Myocarditis Foundation where they too have a forum.

    I do hope this helps you Emma. All the best.

  • Posted

    You can contact the BHF( British Heart Foundation) or Cardiomyopathy Association, they both have nurses you can talk to, you will find their details & websites online.
  • Posted

    You can contact the British Heart Foundation or Cardiomyopthy Association, they both have heart nurses you can talk to, you will find their details online.
  • Posted

    You can contact the British Heart Foundation or the Cardiomyopathy Association, they both have contact details online & have heart nurses you can talk to.

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