1. Community
  2. Bones, joints and muscles
  3. Fibromyalgia Syndrome

Myofascial pain syndrom

Posted , 4 users are following.

terig
terig

thanks loxie for getting me back on line !

has anyone any experience dealing with Myofascial pain syndrome.....i was told this was my problem in 2012, i refused to believe this was the only thing wrong  with me but. after seeing neurologist and rheumatologist  i still have only this diagnosis.

2 likes, 5 replies

5 Replies

  • Guy26
    Guy26 terig

    Posted

     I was told the pain in my back, shoulders, hands, etc, was due to myofascial pain syndrome (MPS) and related trigger points few years ago now.

    Fibromyalgia and MPS get lumped together a lot but apparently MPS is a bit different to fibromyalgia as the pain tends to be more localised rather than "everywhere". Some unlucky people have a combination of MPS and Fibro. Ouch. eek

    Most of the treatments for MPS are basically the same as for fibro. Exercise, pain killers and antidepressants or anticonvulsants for the pain if required. 

    I know it is hard to accept being diagnosed with a strange chronic pain syndrome that causes bizare symptoms when there is no concrete test, no cure for and even some doctors refuse to acknowledge as real. 

     I think I learnt to deal with it better once I accepted there was nothing else wrong (no rhematoid, lupus, etc). My pain varies from mild to quite intense.  Gentle exercise (walking, stretching) helps but intense exercise like cycling or weight lifing makes things worse. 

    I take paracetamol, codeine and ibuprofen on a daily basis. I've tried various other meds like amitriptyline but they didn't help. 

    I found some improvement in symptoms from suppplementing with:  Vitabiotics B complex 1 tablet daily.  1000 iu of Vitamin D daily and Magnesium Citrate daily.  I think the Vitamin D is the biggest thing as it helped reduce the fatigue and pain and there is some scientific evidence that it does actually work. 

    There is a decent enough book by Dr Chris Jenner (pain specialist) called "Fibromyalgia and Myofascial Pain Syndrome".  It is about £10 on Amazon.  It explains things quite well and might be useful if you want to read up about the condition. 

     

    • terig
      terig Guy26

      Posted

      hello Guy....Teri here, i am going tomorrow to see an endocrinologist regarding high 'parathyroid' levels i have had for 3 years... they say this can lead to muscle problems so we will see...all other hormone levels are normal. but i do have high uric acid levels. right now i am really concerned about my knee pain, somedays i can't put weight on it at all.
    • Guy26
      Guy26 terig

      Posted

      hi Teri, I hope endocrinology are able to help you.

      Funny you should mention knee problems.  My knee is bad at the moment as apparently I have damaged some cartilage in there. I'm now I'm waiting for an appointment with the orthopaedic surgeon.

       

    • terig
      terig Guy26

      Posted

      good luck to you too....i got an appointment for a coritzone shot next wed.

      a little to far away for me but, i'll take it....we are off to florida on march 3 and i want to be able to walk !

  • Guy26
    Guy26 terig

    Posted

    oh and I assume they have ruled out other 'obvious' causes like low thyroid or other hormone imbalances?

     

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.