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Hi. Bear with me here as this is a long story! I’m a 31 year old male who has been going through hell for the past four months or so. At the end of August I woke up one day with a horrible upset stomach; at first I didn’t think much of it but it continued, and then I was getting other symptoms like constant erratic bowel movements, constant loud gurgling stomach/bowel noises and terrible crippling abdominal pain. Over the next 2-3 weeks or so, the problems were persisting and the pain unbearable just under my belly button so I must have visited around 10 different doctors at my surgery, all of whom I didn’t think were really taking my problems too seriously and they all said “It is possibly IBS” without doing any testing whatsoever. I then ended up at A&E with the pain as it got so bad and they just sent me home without doing anything! I then finally got some blood work done at the doctors and everything seemed normal - no anemia, no inflammation shown in CRP test, liver and kidneys working well, and no obvious explanation for my symptoms. I then had an ultrasound of the abdomen which came back clear and a stool test and urine test which showed no infections. Eventually at my insistence, I was referred to a gastroenterologist who I saw at the end of September who sent me for more extensive blood tests and I was told to hand in a stool sample to test for fecal calprotectin, and go for an abdominal and pelvic CT scan. Anyway after a fair wait, I found out all these came back clear. Nothing abnormal was seen and seeing as my fecal calprotectin was normal I was told it was extremely unlikely I had inflammatory bowel disease. Yet all the time my symptoms were changing/worsening and I developed terrible back pain that moves into my legs and sides while the abdominal pain has lessened slightly. I have been extremely frightened that what I am dealing with is bowel cancer although 20 doctors now or more have told me IBS, but I don’t feel there has been enough tests and I don’t feel reassured. I have lost a fair bit of weight and have tried the low fodmap diet to no avail. It doesn’t matter if I eat or don’t eat, or what I eat, the pain is unbearable and I am in constant suffering with whatever this is. I also have a feeling like I need to go for a number 2 constantly. I have become isolated and my family life is suffering greatly. I have now been sent for a virtual Colonoscopy (CT Colonography) after practically begging for some more investigation but it looks like I will be waiting a fair while for an appointment. The constant pain and discomfort is making my life unbearable and I don’t know what to do. Everything has come back clear including a CEA cancer test so what should should I think and how do I deal with this constant pain? I know a few people with IBS and they have flare ups and it goes, with this it is constant! Having been told I don’t have inflammatory bowel disease my mind keeps telling me I must have cancer, and I can’t get that thought out of my head. Has anyone got any advice or been through something similar? Many thanks for reading!
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