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I have been dealing with debilitating symptoms that put me in the ER multiple times and doctors still don't know what it is. I'm looking for any suggestions, as I'm at the end of my wits.
My symptoms started about 4 months ago... The worst headache I've ever had in my life, disrupted sleep, waking up in panic attacks, heart beating out of my chest, and feelings of paralysis or tingling in my limbs. The hospital did all the critical tests - MRIs, blood tests, CT scans, spinal tap... etc. They decided I'm not currently dying and sent me home. I met with a nuerologist 2 weeks later who told me I have "new daily persistent headache". I was very frustrated because I KNOW that's not what this is.
My symptoms grew to having extreme pressure feelings in my head and eyes. I felt like my eyes were dry like I could not cry. My salivary glands were swollen and I felt pain in my jaw and my throat felt like I could not swallow. Combined with extreme fatigue. Sounds like Sjorgrens right? I met with a rheumatologist and had bloodwork done. Everything came back negative and he said it's probably fibromayalgia. I'm taking medication for it and it's not helping.
Just last night I woke up with this dry head pain where it feels like I'm losing conciousness, my heart was pounding and my veins were popping out of my head (this has happened before). It feels like my vision is going and I have nausea but I never throw up. This is followed by dry mouth and jaw pain, difficulty swallowing, pressure under my right ear where I had surgery, my scalp at the very top of my head goes numb and feels tight.
Please, please send me any ideas you have. I'm 32 years old and feel like my life is ruined.
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