Mystery electric jolts? Help me figure this out.

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I'm a 36y/o otherwise healthy male living in the tropics of Puerto Rico.

Current symptoms: muscle fasciculations up and down my body, although none above my neck that I can tell. Mild, sometimes disappear for a few hours but mostly ongoing.

In my abdomen and lower abdomen area, it (or something else) feels like someone tapping me with a finger. Several times a day -- and this is the worst by far -- one of these taps will turn into an electric zap / jolt that startles me and has me jump up with a wince, increasing heart rate, etc. This makes it difficult to relax throughout the day.

I can feel the twitches / bumps more when laying down, so I'm a bit scared of going to bed at night because they either become more noticeable or just get worse.

I have a 2-month history of dealing with this. It started off pretty bad with huge electric jolts every few minutes that decreased in frequency over time and went away almost completely after a few weeks (I've also made huge diet changes that now exclude dairy / gluten / processed foods / etc).

For about 2 weeks the fasciculations also went away, but now they're back along with a miniature version of the jolts. Rather than posting my entire wall-of-text history of dealing with this, I just wanted to know if ANYONE out there experienced something similar?

Suffice it to say I have been to several ERs (bloodwork and abdomen CT is fine, take some Valium and see a neuro), neurologists (your neuro exam is normal), GIs (no parasites in stool, but you have scar tissue from 35 years ago in your lower abdomen, let's do all kinds of crazy colonoscopies and tests which I passed on), etc and everyone has their own opinion but nobody has diagnosed it. My stomach / digestion / everything is completely fine. The valium really helped once or twice when I needed it, but makes me super sleepy and I want to fix the underlying problem instead. 

I can't be the only one to experience these symptoms...

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  • Posted

    Do you know what caused it? Did you have a stomach bug, vaccine, or an infection before it happened?

     

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    • Posted

      No stomach bug or vaccine. No symptoms of an infection although when they did the bloodwork the next day they found my WBC was elevated at 11. My WBC is now normal at 5 and I'm still experiencing the lesser version of original symptoms.

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  • Posted

    Hi, there, I have been experiencing most of your symptoms and is undergoing series of exam, x rays of neck (I have oesteo arthritis for so many yearson neck), MRI of my spine, blood tests.  But no diagnose yet.  So sorry about your experience.  I am looking at the end of Aug I have some answer. 

    Ellen

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    • Posted

      Hi Ellen,

      Could you describe in detail your symptoms and your history with them? This is the first time I've heard someone else having something similar and would love to see if there is a common thread somewhere.

      Please let me know when you receive your spine MRI results as those could be important as well.

      Thank you!

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  • Posted

    I'm so sorry.  I have RLS, ADHD, and Spinal Stenosis.  At one time I was having your "banging" (I called it as it was LOUD), in my head that would awaken me.  I don't expect to be still for any length of time with these conditions, but I have found that there are prescription drugs that help trememdously when I can do nothing else to relieve the pain and discomfort.  Never found out about the banging, but had cervical spine surgery this past December, and that seems to have corrected that problem.  Therefore, long story short, have your spine checked from top to bottom.  And Exercise!  Water aerobics are invaluable.  Also, get a pain management doctor who will watch your meds and make absolutely sure that you are not having any reactions, etc.  I wish you good sleep, Slay, that is such a blessing when your body stays busy all night and much of the day.

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    • Posted

      Thanks kay, I've had a normal cervical MRI and a thoracic one that showed a tiny T7-T8 protrusion along with a T2 hemangioma. It does not look like those can cause my symptoms.

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  • Posted

    Just as an update, I had a Brain MRI done yesterday which was completely normal.
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