Mystery Illness. Please help

Posted , 5 users are following.

Hi all, 

I wrote on here a while back about some very strange symptoms that came on when i found out i was pregnant. Light sensitivity, and a drunk/high feeling that would come and go. I then miscarried, and for 3 weeks felt fine. Then one day, i woke up with the drunk feeling constantly, and the light sensitivity, and have been this way for 5 months straight, with no break in symptoms. I saw a gastro in February who found yeast overgrowth in my stool. I thought nothing of it, i didn't even know what it was, until i started researching. He gave me nystatin, and my symptoms never changed. Started researching yeast, and was certain it was causing my issues. I went on a strict diet, and found a doctor who deals with these types of issues seems i read a lot about regular doctors who don't believe in it. She put me on nystatin/diflucan for a month, and i had no relief in symptoms. Things i have tested for: 

Thyroid-Fine 

Diabetes-Negative 

General blood testing- Ok (But few neutrophils that fight bacteria 2 points out of range), overall white blood count within range 

CT head scan-Normal 

Food allergy testing shows no allergies 

Probiotics tried (None make any difference) 

Doctor has tried (Metronidazole as it can help fight certain bacteria in the body)- Makes symptoms 10x worse 

Nystatin and diflucan make symptoms feel 10x worse 

GP a while ago said i had a sinus infection (I don't think she knew what was wrong really, she just went off me saying i had some post nasal drip and my nose runs a bit), so she gave me ceftin- This also made my symptoms feel 10x worse. 

So i am not sure if any antibiotic is making me feel worse, or these certain ones irritate whatever i have going on. So i just did the CDSA stool analysis that i heard really helps show up yeast, and what is resistant/sensitive to it. I just got the results, and it shows no yeast present in my stool, and this test took 3 different samples from different days. Now i am completely disheartened because i have no idea why i feel this way, and it is really scaring me. Does anyone know other things that can cause these issues? I will give a quick run down of symptoms. 

Constant drunk/high feeling 

Light sensitivity (Not so bad outside in natural light, much worse with indoor lighting) It feels like when you first wake up and turn a lamp on, but my eyes never adjust to the light. 

Undigested food in stools 

Hard pellet stools 

Carbs/Sugar/Caffeine make symptoms worse 

Random itching over skin but with no rash (Sometimes mild hives are present) 

Heavy feeling eyes/Sometimes feel very sleepy after food 

Feel at best first thing in the morning 

Sneezing sometimes/runny nose 

Post nasal drip sometimes 

Itchy anus/inside ears/nose 

Slight runny nose sometimes 

Had chronic constipation before this for 2 months 

Had root canal-Had tooth removed, made no difference 

I am at my wits end, and i worry i have something really rare and life threatening.

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  • Posted

    Hello Emzie,

    The constipation is easy enough to remedy with plenty of water including a glass of Fybogel or pysillium (both natural) in a full glass of water. Magnesium citrate tablets at bedtime will produce a large, soft, easily passed stool every morning without fail...with no pain or discomfort. So you can at least get that off your list of concerns. 

    Secondly, I would eliminate ALL dairy products except butter for the moment. The post nasal drip, sneezing, runny nose are likely caused by dairy. That's what they do to me...except add coughing...lots of it within a half hour of ingesting dairy!  I think you would feel a LOT better once you replace dairy with almond milk which is delicious and has just as much calcium. That's all I drink. I never eat cheese and only once in a blue moon will I be tempted to have a bit of dairy. But your body is in crisis so really, you should avoid any dairy products until you get this sorted out.I feel very sure that once dairy is out of the way, you will be able to cross the nasal symptoms off your list too.

    I think that the constipation and the runny nose/post nasal drip are unrelated to your blotto feeling and light sensitive eyes. 

    It's best to go on a low carb diet for a while because carbs support inflammation...and your body is reacting to something.

    Important concerns:

    Did you have any immunization close to when the symptoms started? 

    Could you have been bitten by a deer tick? My friend's son was bitten unbeknownst to him and got all kinds of strange symptoms and sorry to say is now quite debilitated with Lyme disease. My daughter was bitten by a deer tick but I saw the bullseye mark on her neck (there is not always this strange mark) and rushed her to the doctor's for antibiotics. The blood test showed up negative for the disease...but it often takes 3 or 4 blood tests before it does show up so she took antibiotics preventatively. My sister in law in Switzerland was also bitten by a deer tick...and took antibiotics right away. 

    Did i suggest this to you once before? Why not visit a neurologist to rule out multiple sclerosis? Do you ever lose sight in one eye or does your vision dim? Are you clumsy at all?

    You seem to be doing everything you can, getting tests and keeping track of symptoms and that gives you power, Emzie. The more you are informed, the less worried you have to be because you are doing everything you can to get to the bottom of this mystery condition. That is better than sitting passively and doing nothing but worry. Sounds like you are working hand in hand with your doctors. It could pass before you even figure out what it is. But in the meantime, do what you CAN do in terms of getting yourself in the best shape possible by eating well, getting out with friends, sleeping well (the magnesium should help) and drinking plenty of water. (tea and coffee don't count because they are diuretics...make you lose water through pee.)

     

    Let me know if any of the suggestions above, help. 

    Take care!

    Robin

     

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  • Posted

    So, you were a healthy young woman with none of the symptoms ( i presume you were born in 89) prior to getting pregnant. Suddenly, you get pregnant then you have all these symptons?

    Quite a few of the symptoms point to allergy except you had none prior to getting pregnant. You tolerated dairy, lots of people can, with no symptoms. There are some foods that with GI upset can become troublesome, like dairy or wheat but it doesnt mean you are allergic to it. Cutting it out is a compensatory effect. It may not be the cause. My guess is it wont alleviate your symptoms.

    A lot of this sounds hormonal disruption of getting pregnant.

    Was it a planned pregnancy?

    You were happy to be pregnant and wanted a child?

    Do you take drugs such as nicotine, cannabis or lsd?

    Looking at all your symptoms I immediately thought carbon monoxide poisoning but as you say no prior symptoms. Unless you have moved at the same time to another home or changed work location or your car etc...?

    Some people are highly sensitive people and can create internal excess of carbon monoxide in their blood with can cause quite a few of your symptoms. This could be hormonal/stress response of becoming pregnant.

    Your doctor and indeed anybody reading thishas no other evidence to go on.

    Cettainly all those chemicals they are dishing out wont help. You need to find a proven cause, to proceed. Keep working with your doctor.

    A good natural remedy for yeast infections is Kefir, a natural probiotic you can make yourself at home with kefir grains and soy, rice or coconut milk. Kefir is proven to kill yeast in the body as its toxic to yeast with it good bacteria and also help good bacterial function in the gut.

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  • Posted

    Post natal drip - to me - means acid reflux, maybe silent. It is also possible you have mercury fillings and they can cause a lot of upset and illness. I know a lady who had to think of having hers removed because of how bad she felt.
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  • Posted

    Hi,

    You have a lot to contend with ,but I don't know I am not a health professional but you sad you had an allergy test Ai would have thought that might have shown up dairy!my friend a nurse who had excema had allergy test and showed up dairy!so I don't know but I am not a GP or any specialist just saying what happened to her ,Hope you don't go on Dr Google which will throw up all sorts of illnesses relating to your symptons.

    wish you well.

     

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    • Posted

      It is fine to check with google, if you don't you might wory more. So long as you analyse the information and look at it in a logical way. It has helped me a lot, telling me things the doctor would not, usually when I have some horrible symptom and start worrying and then find it is a side effect of the medication - which is NOT listed in the leaflet. Always remember a lot of the side effects are noton most sites and the leaflet, you have to delve more.

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