Mystery Illness that has plagued me for years
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Hi all,
I was wondering if anyone can relate as I have had an illness that has plagued me for years with no answers. It all started when I was pregnant 6 years ago. I started noticing in stores with big overhead lighting my eyes couldn't adjust to it. It was as if it was just turned so bright my brain wasn't adjusting properly. I also noticed feeling a bit spacey but put it all down to hormones. It would come and go and then a few weeks later, I lost the baby. After that, I just went downhill over the years but doctors couldn't find anything. I was just told it was anxiety and depression because of the baby loss. Of course I was upset about the loss, but I know my body and this isn't anxiety and depression.
These are the things I have had over the years: twitching all over body, stabbing sensations, constant light sensitivity to where all indoor lighting looks really bright and like my brain can't process it, off balance, feeling drunk and like my brain is poisoned and toxic 24/7, weird flashes of light when falling asleep at night, racing heart, feeling faint upon standing up, chronic constipation, rashes, itching and hives over body, achy joints, nausea, vertigo, bloating, gas, sound and smell sensitivity, smelling things that aren't there, severe head pressure, back pain, constant swaying sensation and like the ground is moving, feelings of nerve irritation, up and down temperature, burning mouth syndrome, chronic sore throat, burning all over body, itchy all over body, chest pain, bad breath, neck tightness, pain, feeling like head is too big for neck, hair coming out.
Things I have tested for: lyme, positive on two specialized tests, negative on regular lyme testing.
Thyroid - Fine
Sibo- Treated
MRI - Normal
Told I had mold illness. Treated with binders for 9 months, made no difference to symptoms
May of this year found mold in my home - felt worse but also had a chiropractor adjust me for terrible pain in my lower back and have never been the same since.
I now have a constant swaying sensation as if I am on a boat trying to keep my balance, and I now feel like I am constantly being strangled, clicking when I swallow and feeling like the mechanism in my throat is off and swallowing isn't working properly. I also seem super reactive to things.
I am at my wits end. I want my life back and feel like I am never going to get better and wonder if anyone else has had something similar.
0 likes, 1 reply
Marina_Dee m19055
Posted
That sensitivity to light while you were pregnant sounds like pre eclampsia, and I wonder if you were diagnosed and treated for that?
I have to agree with your doctors that you sound as though you have extreme anxiey and depression. Were you ever counselled over the loss of your baby? Did you have supportive friends and relatives?