Nasal septal perforation advice

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After numerous visits to the doctors over a few years, our teenage son was diagnosed with a “huge” nasal septal perforation. A nasal septal button was fitted that was 28mm diameter with a centre core of 6mm diameter, it was fitted complete at this size. We were told this is what is normally used but usually cut down to fit. We were also told due to not having much cartilage left at the base of his nose where nostril openings are, that it may not be successful. When he went for a follow up appointment the ENT consultant said it had moved and pulled it out. He went on to say nothing more can be done. This leaves us in a position where our son is miserable due to breathing issues and we believe its making his asthma worse.

We are wondering if anyone could offer any advice on getting a solution, if anyone knows of any doctors or techniques available via the NHS within the UK that could help?

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5 Replies

  • Posted

    Oh Jane, this sounds awful for youre Son. I unfortunatly I have no idea about your Sons problem but if i do find any information that might help I will sertainly pass it on to you. Take care and the best of luck in your search for a possitive result. 
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  • Posted

    Hello again Jane, i just found a link for you

     https://www.nuh.nhs.uk/handlers/downloads.ashx?id=17211

    worth a try.

     

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    • Posted

      Maggie,

      Thank you so much for that link and your kind wishes, it's very much appreciated.

      I have seen it before but now you've mentioned it I'm going to print it off and take to GP and say we've found this, can this be done? It's UK NHS document so they will at least have to give a good reason why this cannot be done at our NHS trust.

      Once again thank you.

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  • Posted

    Hi jane76658

    Did you have a copy of the document as the link no longer works. Iv got a 1.5cm hole in mine and been told nothing can be done. I'm trying to find out if this is true or not.

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