Posted , 14 users are following.

Hi folks.....It's been awhile since I've posted anything, but I've got a question and a quick update.

1st) I'm in the process of tapering (again).....I'm at 10.5mg and have been for about 1wk. the past several days, I've been waking up feeling terribly nauseous. about 20-30m after I take the pred, I seem to feel better. so far, no other symptoms! does this sound familiar to anyone else?

Also, I'm in one of those "it never rains, it pours" fazes.

last week I had another ct scan as my pulmonologist is baffled why I'm having more problems with my shortness of breath. she tested for a lung clot and thank God it came back clear. however, what they DID find was a nodule on my thyroid (which was not even on my radar!).

now, I've got yet another appointment with a new doc to see what that's all about!'s always something and as usual I'm anxious.

I hope all you fine folks are doing well and had a good holiday season.

I've missed ya!!

take care, Lynda

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10 Replies

  • Posted

    Hi there Lynda

    what a lovely surprise to see you posting again Dear.. but sorry to read that you are holidaying

    most of the time passing scans and doctors Oh gosh, you certainly are having a bit of a rough

    time at the moment ...

    Hope that you will get yourself off to see a head and neck surgeon ( ENT) regarding your thyroid .

    glad to read that you are reducing the pred and as soon as you are off it completely your mood and outlook will be much better ..

    Still many problems with this forum , but it will eventually get its self sorted i hope

    keep in touch and let me know how you are getting on ... cyber hugs


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  • Posted

    Hi Lynda, sorry to hear that you're having problems with breathlessness. I've been having similar problems for the last year (though I'm asthmatic which complicates things). I don't have any suggestions for you other than to say keep pressing for answers, there must be a reason. Unless its linked to your thyroid. My best wishes too you.

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  • Posted

    Many years ago when she was still quite young my sister had an op to remove a small cyst on her thyroid. It meant that part of the gland went, too, but the good news is that she has never had any further problems. She does have to take thyroxin and I know she has never had to increase the dose. She was diagnosed with PMR fourteen months ago and her reductions are going ok although she has had the all too common flares around the 8 mg. dose.

    Hope you soon get reassurance. One thing at a time is more than enough.

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  • Posted

    Lynda -

    I find when I am too low a dose I wake up feeling nauseous and it slowly resolves after taking my morning dose.

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  • Posted

    Hi lynda, i too after having a ultrasound scan was found to have a nodule on my thyroid and have some bloods done waiting for the outcome, my doctor at the moment does not seem worried, but i also have a nodule on my lungs.

    keep in touch with us all

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