Nausea, Lethargic, Falling Behind in School
Posted , 7 users are following.
My iron is around 1,300; I've noticed joint pain, nausea, and fatigue. As my iron levels have been going up, nausea becomes more intensified, and I have thrown up a few times because of it. I also notice that I just don't feel awake at most times, I'm always tired, dizzy, and never focused. It's becoming hard to just get on with my day and work hard in school, I used to be so good, and now I just don't feel like myself anymore. It's even making me feel depressed.
I'm afraid to eat anything with iron because I don't want to add onto what I've already got in me (I haven't had a venesection in months). Can anyone please tell me what their diet is.. tell me what I could eat and not feel sick after eating it.. I want to feel like me again 
1 like, 14 replies
zach76568 Jenne
Posted
lynnsk1 Jenne
Posted
Hi Jenne , my iron was 1905 last January and I’ve had VS weekly until now, it’s down to 34. Although I have cirrhosis thru mis diagnosis I remain very positive in everything I do. I take supplementS BAC & Alpha lypoic acid, milk thistle , curcumin & ubiquinol. I drink milk with dinner, cook my veg with a green tea teabag and haven’t eaten any red meat. I also have really painful knuckle thru iron overload and my wrists won’t fold like they used to which is a pain as I’m a pilates teacher. I obviously don’t drink ANY alcohol. I do get tired allowing myself to be a bit lazy but I’m obviuosly looking to stay alive and bring the iron out if it’s liver store so as not for cirrhosis to get worse etc. Stay Positive and just think how lucky you are to tell the tale. I’m 61 in Feb and only got diagnosed 1 year ago!!!! I have a lovely 1st grand child do I have more to be grateful for even tho I was FURIUIS that Drs had missed such a simple blood test after me having a life of joint pain degenerative facet joints etc.
I wish you luck and tell you to match up to blood unit and Demand VS & get that iron DOWN for a start. Don’t delay xx connect with me anytime x
lynnsk1 Jenne
Posted
Also Jenne you could try doing a liver detox for 3 days if you’re liver works well so does the body, the liver had about 500 jobs to do . Mornings have a smoothie of 1cup pineapple/3”cucumber/cup kale/3basil leaves/ 1teasp cinnamon. 1” ginger. 1tbsp coconut or good quality oil/1/2lemon squeezed & teaspoon honey to taste if too sour. Drop of water if needed to smoothie it up. Actually it’s yummy. Usually I have porridge with blueberries or poached eggs on wholemeal toast & avocado for breakfast. No packet cereals.
Jenne lynnsk1
Posted
Thank you so much, I'm hoping that my parents can get in contact with my hematologist to schedule a venesection. I'm terrified of getting permanent issues from H, especially since I'm really young, I'm only 17, and I was diagnosed when I was 14. I get pain on my side (where my liver is), so hopefully, this detox could help it out a little. I have pain in my knuckles, hips, knees, and ankles sometimes, which isn't really helpful when I have to participate in gym class. You're very brave for maintaining optimism with H; I try to do that as well.
sheryl37154 Jenne
Posted
If you are young enough to still be going to school and have a ferritin level that high, you have a serious problem and should not be messing around with it.
Tell your parents you need venesection treatment straight away, or just go to your dr yourself and get it sorted out.
Diet does not solve your iron issues unless you are eating food fortified with iron, and iron supplements - in which case STOP eating them.
Get that toxic iron out of you and then you have a chance of feeling better.
Jenne sheryl37154
Posted
I haven't had anything done because my mother won't call my doctor to schedule anything, and I'm 17, so I cant do that on my own just yet. I am avoiding foods that are loaded with iron (like red meats). I don't even want to prevent a venesection because I remember how I felt so much better afterward, Its definitely worth it.. I just can't get them done on my own, which is really upsetting.
sheryl37154 Jenne
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Jenne sheryl37154
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I'm from America
lynnsk1 Jenne
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Jenne lynnsk1
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I'm from America, so technically I can't do it on my own, which isnt fair. I'm having my dad call and see if anything can happen.
Jenne lynnsk1
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Usually my mother would do the calling and scheduling for doctors appointments.. but lately, shes been having memory problems, so she just keeps forgetting to call, and when I remind her about it, she insists that the doctor has to call us..which doesn't make any sense. It's becoming really hard to get her to understand the simplest things. So my father is trying to call instead.. and I'm hoping he knows what he's doing.
Jenne
Posted
Update: It turns out that a nurse, who used to handle my medical files, had retired and never passed my files onto a new nurse. We had to wait a day for a new nurse to go through my records and see what was up. I finally was able to have an appointment scheduled with me hematologist in about two weeks, from there I can finally have another venesection. I can't wait
I remember how I felt so much better after the last one I had.
sheryl37154 Jenne
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Good luck.
miller.jones Jenne
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With a number that high why are you not getting treatment that is madness.
Being afraid to eat will make things worse because you will increase your fatigue (diet doesn't really matter much almost everything has iron)
You will continue to feel sick and it will only get worse until you get your numbers down