Posted , 4 users are following.
Hi,
Saw a specialist last night who was less than helpful he wanted to investigate whether I had actually needed thyroid meds in the first place when I was diagnosed eight years ago. Im still symptomatic on levothyroxine and liothyonine helps with the fatigue but causes palpitations.
I asked the specialist about NDT which is something he said I could try after the above tests have been done.
My question is, does anyone else take this and does it have positive effect on energy and hair loss?
The endo also said it was expensive and unavailable on the NHS in the UK- do any UK patients happen to know how much this is likely to cost me?
Thanks in advance
2 likes, 13 replies
LAHs Tutu123
Posted
I felt terrible on Levo for 2.5 years, changing to NDT gave me my life back. So a brief answer to your questions are, yes very positive effects on your energy - but probably no on hair loss - sorry about that.
If you live in the UK you can buy NDT from very reputable sources in the US - ridiculously we (who live in the US) cannot do this! Go figure. My NDT (Armour) costs me about $23 for 100 tablets (of 1 grain, 60mg - which is equivalent to 100mcg Levo)
Tutu123 LAHs
Posted
I think NDT would be the next step for me - I have since been told I could end up paying around £100 for 100 tablets (not very impressed with this!!). Do you have the name of the place I could source it from in the US? Obviously, if I do find NDT works for me I don't want to be paying ridiculous money for it, i would greatly appreciate it if you are able to give me this info!!
LAHs Tutu123
Posted
If you Google "Buy Armour Thyroid online" (or "Buy Naturethroid.." etc) You will find a wealth of possibilities. There used to be one in Redwood City, California who couldn't sell to US citizens but would sell abroad (that was very annoying for me). There is a big International Pharmacy in British Columbia, Canada, that is the one I will use should my doctor think she would like to try something new on me. No more experiments on me, I have to have my NDT because it works, there is no way I will ever go back to that toxic Levo.
Tutu123 LAHs
Posted
LAHs Tutu123
Posted
So yes, I prefer a GP who is enthusiastic to learn something new to an Endo who is following some misguided protocol they are being fed by the American Thyroid Assoc - whose research, in turn, is being funded by Big Pharma.
Wow, sorry to go on but your post read just like my own history.
Tutu123 LAHs
Posted
My GP isn't the most knowledgable but he is like you say, willing to try and listen to my suggestions. He kindly agreed to do all the tests requested by the private specialist for free for me (which is usually unheard of with the NHS). Such a battle isn't it?! I'm still fighting anyway
LAHs Tutu123
Posted
Tutu123 LAHs
Posted
shellyC19 LAHs
Edited
There is also a Thyroid S made in Thailand that can be ordered via Amazon. I know someone on it. It is an NDT.
LAH - I did not know you are in USA, but KMART Pharmacy used to order for me Armour when I was on it. Some pharmacies will order it in for you as a special request, Walmart also.
Shelly
LAHs shellyC19
Posted
Tutu123 shellyC19
Posted
shellyC19 Tutu123
Edited
I am in the USA and I was on it for many of years and it worked on me somewhat. I can't convert T4 so that is why I went off of it. I am only on T3 alone.
NDT, Armour Thyroid is availble online and both Barbara and LAH take it and are in the UK.
So give it a try, you may feel better on it as it is a natural med made from a pig's gland which is close to ours. NHS does not buy it as it is not a patented medication. You can't patent a pig. However it has been around for ages.
Regards,
Shelly
Tutu123 shellyC19
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