NEAD

Hi,

I don't believe you are mad. I think that any medical advice that you are given by professionals, glean from internet sites or indeed receive from on line and face to face support groups has to be approached in an impartial/ analytical way.

The facts are that NEAD is a medical label for a group of people who present to their health professionals with a collection of symptoms that look like epilepsy which cannot be better understood by EEG monitoring.

The facts are that EEG monitoring is only 99.5% reliable. Don't believe anyone who tells you otherwise they often have an agenda.

The facts are that thyroid conditions and conditons such as ME are not medically understood because the vested interest of the world government and major insurance companies has tied up all the research grants into inappropriate and economic damage limitation projects.

The facts are that western medicine divides the body into mind and body and that any problem considered to be generated in the mind is generally believed to be \"not real\" or within the conscious control of the person experiencing the problem.

The facts are that between 20% and 30% of non epileptic seizure have no known cause.

The facts are that western medicine is very reliant on the \"gold standard\" or the bio marker to indicate disease. Your health professionals can only diagnose what they understand and they can only explain what they know to understood. People with medically unexplained symptoms are then unfortunately cared for and or understood within the context of medical theory. And, as theory is not fact that cannot be universally applied. Moreover, the research funding that is often applied for to prove or support these theories can have a bias built into them (intentional and unintentional).

The facts are that people with a known history of mental illness are less likely to receive the fully range of medical testing that people without a documented history of mental illness are and there symptoms are more likely to be explained within the context of their mental illness commonly referred to as diagnostic overshadowing.

The facts are that there is a worrying shortage of psychiatrist and so access to liaison psychiatry within hospitals is extremely patchy and down to a postcode lottery. Without a full psychiatric assessment physiological (ie psychiatric) causes for the seizure cannot be excluded. Psychiatric assessment is unlikely to take place in hospital and patients are unlikely to be referred to a psychiatrist by the hospital consultant or their GP because they can only refer to a CMHT. It is then up to a CPN who has no training in seizures and is not a medical doctor (ie a psychiatrist - so cannot rule out a physiological cause) to build rapport and perform a standard assessment to decide on patient treatment - called dumbing down of the mental health services.

Fact that somatic theory has been hijacked by a group of highly influential psychiatrists for personal, economic and political gain and that their derogatory articles have received high profile recognition and have influenced the thinking of a generation of doctors. This has made doctors less empathetic to patients presenting with medically unexplained symptoms and has particularly helped to marginalise women in healthcare.

The facts are that you are not \"mad\" because madness is not a diagnosis, nor is malingering or attention seeking.

The facts are that you are extremely unlikely to die from your symptoms.

The facts are that you have a quality of life to consider. Talking helps with all problems medically explained or otherwise. But, talking to the right people and knowing when to stop listening is an important skill also.

I believe education, self motivation and self awareness is the best remedy to any problem health related or otherwise.

Best wishes.

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