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I've had focal seizures (cramping left arm and face) for 17 years. Frequency is about once a week. I'm not currently taking medication because Keppra at 1000mg was not working, I had had a reaction to oxcarb and I was and am too scared to try lamictal because of its possible side-effects. :-(
Recently I my first generalised seizure and had to be hospitalised. There they told me that they could not confirm I have epilepsy. They cannot confirm I have NEAD either but I was released without any medication or further treatment, except a referral to a psychologist.
I now presume I have NEAD and have started cbt.
Since then my seizures have gone up in frequency to about 3-4 a week and I am very anxious. I get them all times of the day, whereas before they would only show up at nighttime.
Two years ago I spent a year abroad and I went from approx. 50 seizures down to 3.
What should my next steps be?
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