Neck arm shoulders

Posted , 3 users are following.

hi was diagnosed 15yrs ago seven years ago c1 and c2 fusion have lots of low back pain, itching and now very bad upper arm pains in both arms, still on NSAIDs but the arm pain causes tingling in face arms and hands for six weeks now, GP emailed consultant four weeks ago to see if injection would help no response, l am on NSAIDs but to no affect, does none else have problems with getting referred to consultants my GP l think he thinks l am a hypochondriac as I take many chest and kidney infections too but does not seem concerned and has often misdiagnosed, anyone else have to issues

1 like, 3 replies

3 Replies

  • Posted

    Hi cazzie:

    Sorry to hear that you are having so much trouble with your pain in many places.  Just to put your mind at ease, everyone here are dealing with this day in and day out like myself.  I had the same type of fushion about the same you did but it was on C3 and C4.  I also had 2 lumbar surgeries.15 years later, with many tests, been to 3 neurologist, 2 rheumetologist, 2 epidurals and been diagnosed as having peripheral neuropathy, spondyl stenosis, fibro, and whatever else, has just not been good for me.  I also have nerve damage.  I have a type of autoimmune disease as well.  These doctors wanted to put me on injectible bio meds and being very expensive, lots of possible side effects and whoever know what long term of these meds would cause, I decided I couldn't afford it and did not want to take the risks.  Have you been detected as having fibro?  The injections you are talking about, is it epidurals?  The reason I mention this is because there are many risks with these epidurals and who gives them.  I had 2 with no results and wanted to do more.  Check out you tube and there many lectures given by doctors of these risks.  You will be astounded of what you see and hear.  Not to scare you but down to the last line, I do have to tell you that you must find a good neurologist who has good patient reviews and you have to question these doctors.  If you decide to have an epidural, it should be done by a pain specialist who is an anethisiologist to do it.  Don't settle for less.  Your GP thinking the way he does about you, just about everybody here is in the same boat.  NSAIDS for a long time can be damaging to the kidneys.  See if you can get on someething else for the pain and obviously you need something stronger.  I and everyone else here fight with doctors as giving wrong diagnosis and shrugging you off as a difficult patient who complains.  I had my bout with this.  I am going to wish you luck of what will happen and please let me know which is beneficial.  All of us can weigh the facts.  Try to keep positive and feel the best you can.  Everyone here is so supportive and easy to talk to.  I am a regular here and you can talk to me.  Best of care to you.

    mel

  • Posted

    Hi cazzie again:

    I just want to let you know that what I wrote to you is being moderated.  Maybe it is because I gave you a reference source which the moderators don't like.  Meanwhile I have to wait until it is published.  A few times some of my stuff was published after review and some deleted.  If you want to we can use  private messaging here.  I'm game if you are.  Please let me know.

    mel

  • Posted

    Hi Cazzie,chest pain i find can be very bad,sometimes i've been in tears with this.I take morph tabs & oramorph to help this,without the meds this can be hell.

    hope this helps when you see your gp.

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