Necrotizing Enterocolitis My son Joshua was born 15 weeks early.

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My son Joshua was born 15 weeks early. He was thriving albeit little. 1lb 7oz at birth. he had had his PDA ligated but two weeeks after he had died. He was a little poorly on the friday morning, was very poorly by friday afternoon, critical by midnight and died in my arms on saturday lunchtime. The cause... NEC. It is thought that one of the contributing factors was that when he was waiting for his PDA to be done, he suffered lack of oxygen to his intestine. The more I read about this condition the more i realsie that he fits all the criteria listed. I hope that this does not happen to too many babies. I watched my little angel turn black before my very eyes. He lived for 53 days. RIP little man, mummy loves you xxxsad

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  • Posted

    I gave birth to my twins at 28 weeks. From the outset they had just about everything that was going including PDA, Apnoea attacks and Jaundice. They were both born at low birth weight, Heather at 900g and Michelle at 950g. Both had breathing difficulties at birth. Heather contracted NEC first and although critical survived, however less than a week later Michelle contracted it which resulted in a perforated bowel for which she had surgery at only 4 weeks old. It was successful but she had an ostomy for 4 months. One week after Michelle's operation Heather contracted NEC a second time and within 24 hours she was in intesive care, she sadly passed away 48hours later, she was 5 weeks old. I am certain, like yourself, after reading lots of articles that Heather contracted it twice due to her comprised immune system and also due to her high dependency on oxygen although I still cannot find an answer as to why it struck my twin 3 times between them. It is the most dreadful way for a baby to die and very difficult to watch as a parent, I still suffer dreadful flashbacks 6 years later. Michelle is now a healthy 6 year old but she constantly questions shy she lived and why her twin did not.

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  • Posted

    my daughter crystal was 15 weeks early she also died from nec septicemia and ecoli when she was 16 days old[/quote]
  • Posted

    My grandson died of Nec. I think the blood transfusions he had before he contracted this may have been a cause. That and or Cow's milk that was given unnessecarily. I may be clutching at straws, but there was nothing wrong with him until he had the transfusions. I have heard a dr say that a blood transfusion is the most dangerous medical procedure.

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