Need a diagnosis! Please read

Hi,

I am a 26 yo. white male and have been dealing with chronic fatigue for 5 months now. I have landed a new apartment and my dream job in graduate school but may have to drop out considering the severity of my symptoms. I desperately need a diagnosis or treatment for my condition.

I have been extremely healthy and symptom free almost my whole life and have had almost no medical issues (other than mild erectile dysfunction and incontinence that occurred when I was 24). Then about 5 months ago I suddenly nearly collapsed in the middle of work, just a couple of days after handling a toxic chemical called hydrazine in a lab I was working in. I definitely didn't touch or ingest it (maybe inhaled it though?). There is no test for poisoning by this chemical, other than elevated liver enzymes which I didn't have. Symptoms included dizziness, feeling faint like I was going to pass out, chest pain, and difficulty breathing. 

Since then I have been hospitalized many times with the worst symptoms being difficulty breathing (shallow breathing especially when sleeping), chronic fatigue (can barely leave my room most days), and brain fog (often forget what I'm doing), but other symptoms include stinging in head, numbness in hands, and abdominal cramping.

I've seen many doctors and have had many tests done including mri of brain, ct and xrays of chest, eeg, ekg, lyme test, 24 hour urine, ultrasound, etc. So far the only things that show anything are case of orthostatic tachychardia (mild but worse when fatigue is worse, at one point toward initial incident recorded 60 bpm lying down then 148 bpm upon standing), high serotonin and cortisol levels in urine (although not insanely high), heterozygous for H63D mutation in hemochromatosis gene (shouldn't cause iron overload in most people) when getting 23andme gene testing done. Had an at home sleep study done and average SpO2 was 94, which is a little low? I feel like it might be lower some nights than others. 

I've had terrible reactions to medications and some supplements. Dexamethasone was the worst reaction and the only thing that pulled me out of the attack after a week and a half was a supplement called alpha ketoglutaric acid. I can't even drink a beer without feeling sick for days. Vyvanse has helped me the most but it just masks the symptoms and I worry it perpetuates my fatigue. 

Many doctors have said I have depression and anxiety, which I feel like I don't have. I have had a tough life but I don't feel sad or anxious, other than worried about my health. I have tried talk therapy for several weeks as well as Zoloft for 2 days and Vistaril for 2 days (Vistaril did nothing and Zoloft had too severe side effects to continue). I feel like the underlying issue isn't depression even though all the doctors keep saying it. I feel like it's a cop out answer because they don't know, although I understand my symptoms are vague.

The only other thing I can say is my dad had similar symptoms and was diagnosed with chronic fatigue syndrome when he was 26 as well. However I learned that his symptoms developed after taking isoniazid for a year for TB prevention, which I learned creates hydrazine metabolites in the body. A neurotoxicologist doesn't think that I have hydrazine poisoning because if it affected the brain it should have effected other organs as well, but maybe hydrazine was a trigger? 

Because of the mild orthostatic tachycardia and this feeling I get in my head like if I turn my head upside down it feels like the blood rushes to my head super slowly but powerfully like sludge, I think these are related to POTS with a norepinephrine connection (although my urine levels were normal for this neurotransmitter). 

Any idea what I have or tests that can be done or doctors I should see?? I am super desperate for an answer and don't know what to do, I feel like my life is going down the drain because of this. I'm also worried about trying other anxiety depression medications since so many medications have made me so sick. My concern is that if I don't have anxiety and I have some other fatigue syndrome and covering up symptoms with something like wellbutrin could cause severe damage to my body. I hate asking for help but I really need it right now.

Thank you.

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