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Need a diagosis. Have symptoms of MS. Please help.

Posted , 4 users are following.

tammy__71840
tammy__71840

I am a 51yr old woman, when I was 22 yrs old I woke up paralyzed with crippled fingers and feet and toes. A dibilitating pain like pluresy. I went to emergency room and they said they thought I had Rheumatoid Arthritis gave me a pain shot and some muscle relaxers and to follow up with my Dr. I never did get any blood work, I worked alot and thoht I could work through the pain after somewhat subsided. I always wuld ha pain in hands and feet. swollen red patches of spots ith cramping and burning sharp pain. Through the yearsn never felt good extreme fatigue,always. Not to long ago my hands and feet fingers and toes tingling pins and needles. I have had what I feel is the MS hug. right under ribcage. I have had it last anywhere from 30 mins to intermitted 1hr to 8hr. forgetting things my gait is off and slurred speech. I apoligize for going on and on. I feel like I know someone can help me. I have had testing mri on brain. Dr. said there were some abnormal areas.  spine mri inconclusive because of movement during mri. No answer. Please help!

2 likes, 6 replies

6 Replies

  • PaineFury
    PaineFury tammy__71840

    Posted

    An MRI of the brain is a good indicator of MS, looking for lesions. I would recommend talking to a neurologist about the MRI you had, and see if the lumbar puncture can be redone. Anyone of any age can have MS, so I do hope you can get some answers soon. Do ask for a second opinion if necessary! I've had The Hug for 4 months and I hate it, spasmy hell (along with everything else!). Those diagnosed with an autoimmune disease like MS, Lupus or RA can go on to develop more but do please speak to your doctor.
  • anne95013
    anne95013 tammy__71840

    Posted

    Tammy you do not sound as if you have MS, but the only way is to have an MRI. Change your Neurologist, and let him see your X Rays. Good luck.
  • wendy80842
    wendy80842 tammy__71840

    Posted

    hi tammy,

    i'm sorry that you're in the terrible limbo of dealing with syptoms, but not knowing what you're dealing with, it sucks. i went through it and was eventually diagnosed with ms.

    i really recommend trying the UK MS society website. it's jam packed with useful info and plenty of people go to the forums without being diagnosed. while there's one for those who are undiagnosed or newly diagnosed on the site, i'd recommend going to the 'everyday living' board as there's a lot more 'traffic' and lots of people who have had ms for a long time and can share their experience or advise you. we're also there to support each other.

    i'd definately recommend keeping a diary of any symptoms, it's useful to take when seeing any docs. bear in mind that ms can be a difficult condition to pin down, there are different qualities of MRI, i didn't get a confirmation of ms until i'd been in a third machine (at a larger hospital, with a dedicated neuro MRI), something about resonance?! if antone suggests taking vitamin D, please check with a doc, as it's possible to take too much, i did and it made me feel really awful and caused a very upset stomach.

    sorry that i've rambled on a bit, here's hoping you find out what's up soon, with luck it'll be something more straight forward than ms, but if it is, you're doing the right thing in looking for information.

    wendy .

    • tammy__71840
      tammy__71840 wendy80842

      Posted

      Thank you, I feel like you understand what I am going through. When I go to te Docs I feel like they just aren't listening to me or I am not relaying the symptoms very clearly. I am going to a Neuro who seems very knowledgeable. Thanks for the info. Hope to talk soon. Tammy
    • wendy80842
      wendy80842 tammy__71840

      Posted

      good luck with your next neuro app, unfortunately it's one of those 'nature of the beast' things that most people with this kind of thing have an uphill struggle getting to diagnosis (dx). by the time most of us get there it's a relief to be able to give it a name. again, i'd really recommend the mssociety.org.uk for support from lots of people who 'get' what you're dealing with. i really need to stop mixing metaphores, yikes.

      best wishes, wendy

    • wendy80842
      wendy80842 tammy__71840

      Posted

      apparently adding an address for another site gets a response sent to be moderated, i'd expect it getting to you soon. i mentioned the oozit society again. oops.
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