Need advice

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My mum has copd she been in and out of hospital all the time she's getting build up of co2 in her bloods all the time she can't do anything for her self now as gets out of breath all the time she's lost so much weight now has she never eats tried helping as much as I can but mum doesn't listen anymore it's like a ticking time bomb waiting to go of don't even know how much more bad it can get now 

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5 Replies

  • Posted

    Hi,

    Sorry to hear about this. Has home oxygen been considered for your mum?

    Best wishes 

    aa

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    • Posted

      Hi acuteabdo yes mum has all that oxygen 24 hours a day now it's like she doest want to help herself anymore has carer in but won't let them do much I do most of it thank you for your reply

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  • Posted

    It must be very difficult for you to watch your Mum deteriorating Sumlou and there isn't much that can be done if your Mum just doesn't listen or won't help herself.  

    If you are her official carer you could check with your Mum's doctor about her not eating and the weight loss, the doctor can prescribe something like fortisip which is a fruit milk shake type drink, but then its down to your mother is she likes or drinks it of course.

    You can also check with your Mum's doctor if arrangements can be made for someone from the Occupational therapy team to come and assess your Mum for aids about the house, personal help, day to day help etc,  also ask (as aa has mentioned) if the doctor can arrange for your Mum to be properly assessed for oxygen therapy and if you go with her or are present if she is assessed at home you can ask about or mention about the CO2 retention although properly assessed this should be picked up as this will help determine the literage for the 02 presciption.

    Best wishes V

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    • Posted

      Hi vee2 I'm not mums carer she's has then but won't let them do much for her so I have too do most of it she has every thing the doctors can give her don't think my mum realises how bad it is and if she carrys on won't have long left thank you for replying

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  • Posted

    So sorry it sounds as if she is ready to give in to the disease.  If she has too much then her heart is working over time, her body is tiring and she has no energy ....if she's not exerting energy then she has no need for nourishment.  I hope that makes sense.  Do you have hospice with her?  If not I would suggest that you call an advocate and get her on the Hospice plan.  It is strictly for palliative care and no life sustaining efforts will be made, she will just be kept comfortable clean and you will have someone to talk to about this ongoing and eminent demise.  Unfortunately it sounds as if she is in the later later stages of COPD and it's taken it's toll on her and obviously you.  Prayers to you and your family.

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