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Need Advice

Posted , 6 users are following.

Lainy_May
Lainy_May

Hi Everyone,

I noticed a Herald patch on my back about two months ago. I didn't think anything of it until I noticed it wasn't going away. I treated it for ringworm but it didn't work. I had no other spots for a few weeks then boom it spread to my chest, stomach, groin and small spots on my legs. Went to three doctors before getting diagnosed with PR. I have had it now for 3 weeks and no sign of getting better. Everyday I find more! The sun does help a little but nothing else. It's driving me crazy and my self esteem is at an all time low. How long can you except to keep seeing new lesions? I'm going to see a naturopath tomorrow as I am desperate to get rid of it. Any advice would help thank you !!!

0 likes, 24 replies

24 Replies

  • Rosy_Posy
    Rosy_Posy Lainy_May

    Posted

    Hi Lainy May, sorry to hear you are having spots/rash due to Pityriasis Rosea.  There are a number of others who have contributed towards the discussion on this.  If you can access the links you will see you are not alone in your suffering.  Every person seems to have their own time/ symptoms along with having been diagnosed with PR...some worse than others, so let's hope your will be short-lived and you can get some relief soon All the best. Rosy Posy.

  • tashae60189
    tashae60189 Lainy_May

    Posted

    This is all really so helpful. I’ve been dealing with PR for almost a month and I’m willing to try anything. Any recommendations for lotions or soaps I can use? The rash is spreading to my thighs and legs and I’m not sure if it’s just progressing or my current products are to blame  for the irritation.
    • Lainy_May
      Lainy_May tashae60189

      Posted

      Hi Tash,

      I have been only using QV wash and lotion.. nothing perfumed. I saw a naturopath and was put on lots of b12 foods and fermented foods such as cottage cheese, kombucha, kefir. I went in the sun alot. I'm five week tomorrow and they have almost gone!!

    • stazstaz
      stazstaz Lainy_May

      Posted

      Haven't heard of using fermented foods to help... Have you considered perhaps putting some of the kefir on the outside? I would be interested to see if it has any direct affect on the rash.

      So glad it seems the rash is almost gone!!!

    • stazstaz
      stazstaz tashae60189

      Posted

      Pure coconut oil seemed to work best for me. It kept my skin moist and didn't irritate the rash.

    • tashae60189
      tashae60189 stazstaz

      Posted

      Hey guys just a quick update. The pure coconut oil seems to soothe my skin and stop the itching. I haven’t noticed the rash spreading any further so hopefully it’s peaked and I’ll see less irritation over the next few weeks. Also, I’ve seen a lot of people say to use vitamins to boost my immune system. Anyone try this and have success? Please let me know. Thank you!
  • carole94446
    carole94446 Lainy_May

    Posted

    I think I may have PITYRIASIS ROSEA- how is it diagnosed? it has only been a week but new spots are appearing every day. Does anyone know how I could have caught it? I am 57 and have never heard of it before. 
    • janipan
      janipan stazstaz

      Posted

      ?Guttate psoriasis - reading your notes I'm now wondering if that may be me, I'm 66yrs over the last 12/18mths been very stressed with my ageing parents health 88/90yrs. I have many hot flushes daily just thinking of what may happen during the day. my dr's said PR to me back in May saying it will go on its own with no medication.   I do drink booze everyday which I find it helps to relax but then I think maybe it may not be helping at all.   your comments would be appreciated.

      Janis x x

       

    • carole94446
      carole94446 stazstaz

      Posted

      Thank you for your really helpful reply. I have an appointment with the doc this morning and will let you know how I get on . I’m so sorry you had it for 14 months... it’s been just over a week and is driving me nuts already. I have been under a lot of stress at work and not sleeping so wonder if that could be a factor. 
    • carole94446
      carole94446 stazstaz

      Posted

      Also I wondered where can you buy Prreze in case the doc hadn’t heard of it? A quick look online looks like amazon US? Is it available in UK?

      Thank you again!

    • stazstaz
      stazstaz carole94446

      Posted

      It is on eBay, Etsy, Amazon and a couple of websites the Preeze people own. Online only. Let us know what the doc said!
    • stazstaz
      stazstaz janipan

      Posted

      Stress does strange things to us, knocking our bodies out of whack chemically. I am so sorry your parents are causing you so much pain. Usually, guttate goes away by itself in a couple of months, but it is notorious for appearing on faces, whereas PR is almost never on your face.

      Yeah, docs are really nasty about the "it will go away by itself" stuff. If they had it, they would NEVER say such things!!!

      Booze is a wonderful stress reliever, as long as you do not overdo and NEVER drive while you imbibe.

      I hope you can accept that your parents will not be around forever (although they have been there all your life) (yeah, trying to be funny). I had aging parents also, they have been gone for about 5 years now. My mother had colon cancer for 4 years before she died, so that was nasty. I found that it helped me to live that day, and only that day, instead of worrying about the next one. I made the best of what was available, and simply allowed age to do what it does. We all die.That is a guarantee. Make your life count, even if only in small ways- a kindness, a smile, an unexpected flower or a chocolate. Serving a Mc'Donald's style meal on the best china, or a Pepsi in fine crystal. Just stuff that relieves the everyday stress.

    • carole94446
      carole94446 stazstaz

      Posted

      Hi

      The doc said it’s PR and she sees a few cases every year. She thinks it could be stress related in that being run down could make me susceptible. She says it should go away on its own in 3-4 weeks. Probably a virus . she says there is no treatment for it. 

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