Need Advice

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Hi Everyone,

I noticed a Herald patch on my back about two months ago. I didn't think anything of it until I noticed it wasn't going away. I treated it for ringworm but it didn't work. I had no other spots for a few weeks then boom it spread to my chest, stomach, groin and small spots on my legs. Went to three doctors before getting diagnosed with PR. I have had it now for 3 weeks and no sign of getting better. Everyday I find more! The sun does help a little but nothing else. It's driving me crazy and my self esteem is at an all time low. How long can you except to keep seeing new lesions? I'm going to see a naturopath tomorrow as I am desperate to get rid of it. Any advice would help thank you !!!

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  • Posted

    Hi Lainy May, sorry to hear you are having spots/rash due to Pityriasis Rosea.  There are a number of others who have contributed towards the discussion on this.  If you can access the links you will see you are not alone in your suffering.  Every person seems to have their own time/ symptoms along with having been diagnosed with PR...some worse than others, so let's hope your will be short-lived and you can get some relief soon All the best. Rosy Posy.

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  • Posted

    Hopefully, by now someone has done a biopsy to see what you actually have so you can get the correct treatment.

    I had PR for 14 very miserable months- neck to ankles, in my mouth and scalp, but not on hands, face or feet.

    Sunlight did not help mine. I felt very depressed, people looked at me as though I was some sort of freak. You get self concious, even though it is not your fault.

    If you have PR, try Prreze. I was clear in 5 days.

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    • Posted

      isn't it horrible ! just when you think it's healing and fading new spots come out somewhere else ! Did you have that as well? You get so depressed and feel very isolated.

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    • Posted

      Yes, except that my spots turned into rings, that kept getting bigger, and then a new outbreak would pop up elsewhere, but the earlier ones just made wider and wider rings, with new rings in the middle- kinda like a bullseye target thingy.
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    • Posted

      I thought mine was healing the other day they were very faint and hardly seen then the last few days back to red spots. So frustrating. I know what you mean about the red rings now. My hearld patch and a few other big ones are doing exact that..white in the middle then red ring. When did you notice them disappearing or healing? I'm coming up to five weeks now which is nothing compared to some I know but you just don't know if they are going to get better. My diet is clean eating fermented foods too and exercising daily.

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    • Posted

      I had it for 14 months.. yes, I was diagnosed with a biopsy. Prreze is what made mine go away. It turned bright red a day after I applied it the first time, then after a couple more days it dried up and fell off. Skin around and under it was moist, just the rash went away. The light spots left after the rash faded to skin color in a few weeks.
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    • Posted

      Hi stazstaz, I saw a specialist on Monday - who could do nothing - other than offer me a prescription for some Difflam mouthwash - which does not help too much. Still no taste in any food (except some really sweet things, which I can detect) ulcerated mouth changing from day to day...difficulty cleaning teeth and very sore so can only eat soft pappy food to sustain the body.  What was your terrible 14 months like? I am not really bothered by the rash - which seems to be fading ...very slowly.  Luckily no itching.  It's nearly Christmas and I'm desperate to enjoy something ANYTHING at all. I've just been referred back to my GP?

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    • Posted

      My PR was neck to ankles, and I guess the Prreze spread all over the outside rash took care of enough that my immune system handled the rest (or just the idea of the Prreze scared the mouth ulcers away) anyway, all the rash and the mouth ulcers disappeared together. As soon as the rash went, my taste buds returned.
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    • Posted

      Thanks stazstaz,   I've had the most miserable Christmas ever!  Could not taste anything at all...and much too painful when I tried anything other than 'mushy' foods.  I'm going to try the 'prreze' if I can get it in this country(I'm wondering if that might work for my mouth ulcers too)  Many thanks for keeping everyone up-dated. 

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    • Posted

      I do not know if it helped mine directly, I just know that within 5 days of using it all the rash on my outsides dropped off, and the mouth sores went away at the same time- maybe because I was covered in the cream from neck to ankles? Maybe whatever makes it work just worked even in places I did not put it? Good luck, my poor baby!!!
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    • Posted

      My PR is around 16mths now and getting worse I'm sure nerves are today with it, I have tried preeze with no success, I'm trying hard to keep calm but when I look at myself in the mirror what a horror I look x x

       

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    • Posted

      If Prreze did not help you, you do not have PR. Have you had a biopsy done? I cannot tell people enough that if you are the patient, the doctor is there to serve you. When a doctor says, "oh, we will wait and see, take these steroids, come back in a couple of months if it has not gone away"  they are actually saying "I don't know what you have, but it doesn't look deadly, so it should go away after awhile, so I really don't care". As a patient, you can tell the doctor you want to KNOW what you have. A biopsy will answer that question.

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    • Posted

      Just wondering if the Prreze is working! Patiently waiting on mine. I can’t wait for this to be over.
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