Need Advice

Posted , 7 users are following.

I was diagnosed with LS 5 years ago. Had very few symptoms until recently.  I have some labia fusing which just started.  My gyne said it was a very little amount.  Where I wasn't having any symptoms I kind of eased of on my protocol so I am now back on track.  My question is can LS affect the anus?  I feel my stool is becoming more narrow and something just don't feel right.  Has anyone experienced similar symptoms?  I very concerned with this.

0 likes, 8 replies

8 Replies

  • Posted

    My LS is all in my anus.  

    Often with a bowel movement I burn.  

    My first flare up lasted 3 weeks and I was in agony.  It never came back until 4 years later and this flare up lasted 8 months.  

    I was only diagnosed with LS when I presented myself to the doctor every week for 5 weeks until they figured  it out when I had the 8 month flare up.  

     Are you on Colebestol?

    • Posted

      Yes I am on Colebestol.  I was concerned the anus was closing over and that was the reason for my narrow stool.  My gyno checked my vaginal areas but I don't think she checked the anus.  It seems like I have the burning and redness under control, baking soda baths and borax sprays help, but my stool is still narrow and I wanted to make sure the anus doesn't close over.

    • Posted

      I can’t answer that.   My stools are fine.  It just burns every time.  
  • Posted

    I had a flare up  between my anus and my coccyx.  I suspect I may have LS on my anus as well.  Alex-do you use the clob on your anus?  And is your LS on the anus, or inside? 
    • Posted

      Yes I do use Coleb on the outside of my anus.   

      I use Coleb twice a day two times a week to keep the problem under control.   

      During a flare up I use it 3 times a day until the pain is gone.  

      I haven’t had any issues with my clitoris or labia being fused however I must say since this whole diagnosis and the 8 month flare up I have certainly lost my desire to have sex.  

      The flare up started in August last year.  The pain was unbearable to the point I was in tears for about 6 weeks until my GP sent me to a dermatologist and she figured out the problem.  

      I have virtiligo on my legs so I thought the white patches just travelled to my genitals to find out it is LS.  

      A secret autoimmune disease that no one knows about.  

      I have had a discussion with some GF’s about this and their reaction is always “Is that a thing”. 

      At first my GP thought I had vaginal psoriasis.  

      I have 4 autoimmune diseases.  Rheumatoid Arthritis, Virtiligo, Paoriasis and now LS.  

      All under control now so I am thankful for this.   

  • Posted

    I find using cream around area for chafing. Keep area dry. Easy wiping.not much else you can do.
  • Posted

    Dear Betty- Yes, LS can affect your anus, your perenium, your genitalia and other areas of your body as well- anywhere there is skin! Just like it can narrow and tighten  your vagina, it can also tighten and narrow your “ butthole”. Many of us are cutting out gluten / wheat and the loss of essential fiber leads to hemmerhoids  from pressure on opening. I use Emuaid on my butthole, butt crack and perenium when it feels irritated. I hv also found other fiber sources to help with hemmerhoids ( also called piles), hard to do on low oxalate diet when I can’t hv beans or many veggies that I love.  I believe you can use Clob on your anus, perenium, etc., but remember to use a very small amount and only on affected tissue, not healthy tissue. 

    Good luck to you! 

  • Posted

    HI Betty,  yes my LS started in my anus as well. With all my searching for nutritional solutions, I have gotten better, yet I have noticed that my stools are narrower. I take magnesium in the evening so that my BM's in the morning are more comfortable (besides the fact that magnesium is needed for other balance with VitaminD3... Betty, do you take Vitamin D3 and it's cofactors? 

    I too eaed up on my protocol last month and then discovered my mistake! won't do that again.  I"ve just recently discovered another amazing possibility from a friend who has other issues. I'l post ita ll in a new thread... 

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.