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Hi All! I'm hoping someone can share a similar experience and advice. I developed Graves' Disease in 2016 after the birth of my son. I had a total thyroidectomy on 2/2/18. Three parathyroids were noted to be viable after the surgery. One was unaccounted for but did not show up on the pathology report. I had outpatient surgery and went home same day. On the third day post op I developed severe hypocalcemia and had parasthesia and tetany of my hands and face. My face was distorted and I could not speak or see. The ER doctor initially thought I had a stroke and said it was the worst case of hypocalcemia he'd seen--but at my lowest, my calcium was 8 and my magnesium was 1.4! I was treated with calcium and magnesium and discharged. Two days later I was back at ER because I was still experiencing numbness, tingling, twitching, vibrating,etc and was so nauseous I could not keep any calcitral or calcium down. I was treated with anti-nausea IV, given magnesium, and discharged. My calcium showed high at that time. It's now been a month and I am still experiencing terrible parasthesia, weakness, tremors, nausea. I can barely walk and am unable to work or take care of my little boy. I am worst on my left side, but both sides are affected. I'm taking 50 mcg calcitrol once daily, 1000 mg calcium, and 330 mg of magnesium daily. My labs are normal. My calcium has maintained in the low 9's. My endocrinologist is dismissive because he said it doesn't add up. I have a neurologist consultation scheduled for next week. I wish I had taken the radioactive pill now, but I didn't want to be away from my baby. Now I'm scared and unsure what is wrong with me. Has anyone else experienced something similar, and were you able to treat and resolve?
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