Need advice for Chronic pancreatitis diagnosis
Posted , 4 users are following.
I have not been diagnosed with CP my MRCP and CT were fine in March. However I have fatty stool which my dr says is EPI. I am freaked out because the google told me EPI is usually caused by CP yet the see no abnormalities and all my blood and stool was fine except excess fat in stool. Now my lift shoulder blade hurts on the outside by my spine. Help! I am so worried I have CP and they could miss it. I am told an MRCP is the gold standard. I am reassured to see how long y’all have lived with it. Dr google made it sound like a death sentence. I am a 46 year old female and don’t drink and no weight loss
1 like, 15 replies
Averagejoe01 Guest
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Guest Averagejoe01
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Averagejoe01 Guest
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jessie92598 Averagejoe01
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Feel like I'm encroaching on a conversation between all of you. I'm older than you all and haven't had the test you've had. But still very worried. I , like many , have been all over Google and it has convinced me that I will die shortly. I had H-Pylori last year. Got rid of it with treatment. But the upper middle pain never left. Had three endoscopies , a heart cath , colonoscopy , upper GI , numerous CT scans of the whole body , tons of blood work . Everything turns out fine. However the upper ab pain never leaves. Have not had a EUS endoscopy or ECRP though. Have an appointment with the gastroenterologist next Thursday and will ask for the EUS. I don't seem to be deficient in anything as I have always taken vitamins and minerals for 15 years. They all say get checked early to find problems early. I did but I have to ask for everything. Docs don't suggest what to do. That's why I'm on Google a lot. Trying to find what's next. I would love to get one good night rest and not be woken by pain. Best of luck and maybe a miracle for each of you.
kay82451 jessie92598
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I became ill on vacation and sownt 3.5 weeks in ICU in NY. My husband hired a plane to get me to MUSC in SC. They were amazed I was alive. Lost 50% if my pancreas. Spent weeks in the hospital off and in for months. With 6 procedures to remove the dead pancreas. Malnutrition, lost 45 lbs in 2 mos.
Had I not made it out of that hospital I will ups not be here today.
My point here is if your Dr does not specialize in the pancreas your behind the eight ball. So many GI Drs have very little knowledge of the pancreas. I can say the internet is your enemy!!!
Wishing you the best of luck.
jessie92598 kay82451
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You might be right. The pain just getting worse and worse. Have pancreatic specialist close by. So I'll keep my appointment with the GI doc. And ask him to recommend one. Hope you're right though about me not having a pancreas problem. Just scary because if I eat a regular meal , I double oven in pain for 2 or three days. Good luck to you and thank for your input.
kay82451 Guest
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Your symptoms do not sound like CP.
If your that worried I’d see another Dr. but searching the internet is no way to look for a diagnoses.
Wishing you luck.
jessie92598 Guest
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I'm also in that boat with you. Upper abdominal pain day and night and floating stool. Had three endoscopies in 12 months , blood work , hida scan , all clear. Never had a EUS ultrasound though. Have appointment wit gastroenterologist doc Thursday though. Tired of being sick 24/7 and I want an answer. Doc never even suggested a problem with the pancreas over the past 18 months.
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fenty Guest
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Guest fenty
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I have a CT, Hida scan, MRCP, octreotide scan. All imagining came back normal. I have 4 stool test done and only excessive fat cams up increased. I had tons of blood work and I am D and B12 deficient which with supplements went to normal. They tried me on Creon but it gave me awful diarrhea. I haven’t lost any weight.
Did your imaging show damage to your pancreas? What lead to your EPI diagnosis?
Guest fenty
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Averagejoe01 fenty
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Averagejoe01 Guest
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Guest Averagejoe01
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