Need Advice - is continued flare-ups part of the Allopurinol experience?
Posted , 7 users are following.
I am 51 and have had gout for 4 years with intermittent attacks. 5 months ago I started Allopurinol and am at 300mgs now. Went from UA 8-9 to around 5+. I don't drink and lost 50 pounds. My diet is good (plain oatmeal, fruit, greek yogurt, cottage cheese, eggs, almonds, 6-8 oz chicken, vegies, bean/vegetable soup and sweet potatoes). I stay under 1500 calories a day. Got to lose 30 more pounds.
I still get flair ups - every 10 days or so. Its like a 4 or 5...I can walk (limp) on it but its a nagging pain in the same joint (big toe). I take colcrys and Naproxen at first sign of pain to keep it from getting worse. It usually fully goes away in 2-3 days.
I just started drinking cherry juice, and apple cider vinegar, but it doesn't seem to make a difference.
1) Is it normal to have these flair ups on Allopurinol ongoing? do I just consider this part of my life now? ask for an increase to 500mgs? or ask Dr for something else?
2) what else is there to take? I have no side effects on Allo other than these flair ups.
I know some of you have it worse. But I cannot plan ANYTHING (gym, social, outings) because I simply don't know if ill wake up limping.
Thanks.
0 likes, 7 replies
SandyG01 Speecher
Posted
ted64745 Speecher
Posted
Also are you on diuretics or other medications that can cause gout? If so you may have to work with your doctor to find alternatives.
Good luck.
ted64745 Speecher
Posted
Speecher
Posted
What horrible side effects do you get from Allopurinol? My Dr told me all i had to worry about was short term possibility of flare-ups until the Allo worked the UA out of the body.
sabre0492 Speecher
Posted
Changes in uric acid levels cause flare ups and this is for both raising and lowering. That's part of the reason you're not supposed to begin taking Allipurinol for the first time while you're having an attack. Typically, it takes a few months for the drug to equalize levels. I would caution against increasing the dosage. This drug is no joke.
I can't take it because I have liver and kidney disease. You may want to have your blood-work done with a kidney panel just to make sure everything is okay there. Poor functioning kidneys do not do a good job with excreting uric acid. As a matter of fact, under excretion is responsible for 90% of all gout cases, while over production of uric acid causing attacks is at 10%
Cherry juice doesn't work for me. I've tried ACV, baking soda, lemon water, everything. Nothing really helps, but I normally only have attacks once a year. Coincidentally, in the spring when the weather gets warm/hot. I know dehydration is a major trigger for me, so I drink a lot of water.
Good luck, but like I said, I would not start increasing that dosage yet. Give it a little more time to work its magic and, in the meantime, stay hydrated.
21Dewsbury Speecher
Posted
Allopurinol is a wonder drug for many of us.
It is critical to note that you MUST be patient with it and above all do NOT stop taking it.
It can take up to a year to settle down. I have been gout free for about 5 years thanks to drug.
Ensure that you are talking to a medically qualified doctor who specialises in this area. A GP will often not be fully informed.
But allopurinol is often(usually?) a fantastic solution.
My specialist (medical expert) advised me that lifestyle/diet is FAR less important than taking the drug.
Works a treat for me!
Prbhtg Speecher
Posted