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So the past few weeks I've been stressing about this AS stuff. I remember learning about it in respiratory and echocardiography school years ago with its effects on the aorta and lungs.
2 years ago I've had this waxing and waning SI joint area pain that when it flared up caused me to have a hard time walking. There was really no rhyme or reason to it. But sometimes if I did a brief jog with uncomfortable shoes or did a leg press at the gym, about a few days later I noticed it would flare up. And it would be bad! My gf would need to help roll me over in bed. I would limp. This would carry on for 4 days and then be gone. Then I would be pain free.
Im 33 years old and male BTW.
Over the past year I noticed a new problem. Awful early morning back pain that would wake me up around 4-5 am. It would seem to effect different parts of my back. Sometimes in between the shoulder blades or the lower back. I would get up and in about 30 minutes it would go away. Sometimes I would feel uncomfortable sitting.
I went to a rheumatologist finally. He did a mobility test and said that AS or inflammatory back disease seemed highly unlikely....although he said I had a classic inflammatory story. Anyway, my mobility test or whatever initials he called it was "supranormal". He told me to avoid using the term SI joint area, he suggested I use lower back pain. I told him when things flare up that I wouldn't be able to do some of those mobility things.
He said if I wanted to get the HLA B27 test for peace of mind I could.
And it came back positive. He wrote me a letter saying that 8% of the world has a positive result and of that only 1% get AS.
I am really upset about this reading these things online. I don't want to be a statistic.
I forgot to mention that I had an xray just before I saw the rheum and it was clear. No signs of AS.
What does everyone think?
My bed and the soft pillows I use always seem to give me nocturnal back pain.
However, my couch seems to be the trick. It seems more firm than my bed. I even tested my theory out by taking my couch cushion and using it as a pillow in my bed. I didn't have any back pain.
Has anyone expereinced this? By sleeping on a firmer surface that their back pain alleviates? I believe I read somewhere that patients with AS tend to prefer sleeping on firm surfaces. Not sure if there is truth to this.
Can people tell me what I should avoid as in a low carb diet? I make my own wraps out of whole grain flour and eat peanut butter and oatmeal every day. Does this mean I need to give all those foods up?
My rheum is leaning towards that I dont have AS until proven. Or maybe he is trying to just make me feel better. I tested postiive for the gene, but the constant back pain in my bed, and once a month or 2 months SI area flare ups to where I am limping.
He is telling me to take ibuprofen before bed and live life vigariously and see what happens. But I am reading that its best to try to get a one up on it before effects the spine.
What should I do?
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