Posted , 5 users are following.
For years my son has always complained of being unwell, having 'viral infections' more often than not. He got his tonsils and adenoids removed when he was 10 which kinda helped but still complained of felling unwell.
He has has blood tests galore and always seem to be his white cells are low (due to a infection they say).
He was 16 on the 3rd of April and on the 9th of April we were back at the doctors for the results of this recent blood test again were told his white cells were low so to have another test in 4 weeks. Also about his Liver Disfunction!! What liver disfunction? So it was explained my son has GS its mild and untreatable, here's a print out for you to read so this explains his tiredness etc. We were in shock so i asked 'can we do anything to make it better?' reply was 'no' to which i asked 'will this get any worse?' reply was also no.
After getting home and reading though the print out and doing loads of research online I'm still no further forward.
We feel we were rushed in our appointment and expected to just get on with it now we know what's wrong with him.
But i have questions loads of questions.
GS is untreatable i get that but surely the symptoms i.e dizziness, tiredness, sickness, stomach cramps etc can all be treated?
They say its 'Mild' why is it my son struggles to get out of bed sometimes? Misses alot of school ?
He is due to sit his exams at the end of April and is on par to pass but is stressing so much because of his exams and the GS and the fact at 16 years old he know thinks he will pass a bad part of him onto his kids in later life. What 16 year old should be worrying about that?!
I have made a follow on appointment to speak to the Doctor and ask all this but its not until 13th May as its not an emergency.
Im at a loss. Really sorry for just rambling on i needed to get it out.
Can anyone offer advice or understanding?
0 likes, 9 replies