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I'm extremely confused & feel very alone, for the longest time I have been unwell.
When I was younger I was admitted to the hospital on several occasions due to persistent fatigue, nausea & an unexplained fever. Nobody could explain why I was unwell I was just prescribed medication and I eventually learnt to deal with it. A few years down the track I developed an eating disorder which I luckily recovered from but unfortunately since then I have been on a downwards spiral in terms of my health. I feel as though the symptoms I experienced when I was younger have come back with a vengeance and I am slowly going down hill. I'm 20 years old, extremely confused & unsure where to turn. 12 months ago I was diagnosed with endometriosis, I have had two surgeries in the last 9 months & I am still at square one.
The surgeries have helped with the period pain ect but my symptoms have been getting worse:
- Sever mouth ulcers
- Extreme fatigue
- Muscle and joint pain
- Heart burn
- Cold Fingers & Hands
- Daily Headaches
- Brain Fog
- Thinning Hair & Hair Loss
- Insomnia & Night Sweats
- Rash Around My Nose
I have been to the doctors over and over but unfortunately they are just saying its endometriosis & putting me on more and more medication. I have since taken myself off my medication thinking that maybe it was making me feel worse, but that hasn't helped. I honestly feel like I'm going around in circles. I saw a specialist who was sure I had some form of autoimmune disorder but when I had all the bloods don't they returned negative. I am 110% sure I have an underlying condition that has been progressively getting worse over the years but unfortunately I have not been able to find a doctor who is willing to help me. I have listed any abnormal blood results below and I would really just appreciate anybody's opinion on where to go or what to do. Because I feel as though I can't live the rest of my life like this:
CD56 NK Cell - 0.65 (normal range 0.05 - 0.64)
S DHEAS - 3.5 (normal range 4.5 - 11.7)
S T-BIL - 17 (normal range 21-105)
TSH - 2.18
ESR - 1 (normal range 3-12)
B12 - 200 (normal range 200-700)
Vitamin D - 35 (normal range 50-250)
I am on both vitamin D supplements & I have a B12 injection every 3 months.
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