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Need some advice from people that know......

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hank66528
hank66528

Hey guys... got a list of symptoms here for you all.  My doctors suspect possible IBS.  My symptoms are extreme gas.  I mean constant.  Burping and farting almost all the time.  The gas pain creeps into my chest making it feel had to breath sometimes.  Stomach pains all over.  They used to be one sided (LEFT) now the pain is all over my stomach at times.  I get occasional heart burn while burping.  My stools are all over the place.  Sometimes I have really bad diarrhea.  Sometimes it seems normal.  Often times I can see undigested food through out it.  Sometimes it mushy and floats and other times it is solid and sinks.  Sometimes I go days without a bowel movement and other times I go about 1 or 2 times a day.  Nothing seems consistent.  Sometimes I have blood on the tp.  Small amounts.  I have had a hemorrhoid in the past.  Sometimes it feels like a fart or stool is right at my poop hole and wont come out.  But mostly its the gas and bloating and pain.  The pain that goes into the chest scares me when it happens.  I recently had a endoscopy a few days ago.  They said they saw some redness and inflammation down near my stomach and where my intestines begin.  They biopsied it and Im waiting to find out the results.  They said they wanna do a colonoscopy next.  They tried me on the low fodmap diet and it didn't seem to help much.  Seems like no matter what I eat it messes me up.  To the point that Im afraid to eat half the time.  I have lost nearly 40 pounds in 2 months.  Unintentional.  Does this sound like IBS??  Oh and I have really bad dry mouth and white coated tongue also....

0 likes, 28 replies

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  • sam18386
    sam18386 hank66528

    Posted

    You need more tests and go back to your doctor's. The white tongue is NOT ordinarily an IBS symptom, something else is going on. I hope you get the bottom of this!

    • hank66528
      hank66528 sam18386

      Posted

      Thanks Sam I hope I find answers soon too.... this really sucks and is causing me a lot of stress and anxiety.  Real bad.  I think its from not knowing whats going on.  
  • madylon79184
    madylon79184 hank66528

    Posted

    HI hank, you have a lot of my symptoms. I have not yet seen a specialist and am awaiting to speak with my Dr tomorrow to see where this goes. We're you on any antibiotics lately? I was 6 weeks ago and afterward traveled to Mexico where I ended up getting worse with diarrhea. It has been 6 weeks since and I had where diarrhea started in morning and the would have normal bowel movement later in day but numerous. Then progressed to chronic diarrhea in the last couple weeks. All this time with gas, stomach pains high and low. Nausea, Gerd acid reflux . I lost 7 lbs on my 116lb 5ft6" frame. Not looking or feeling good. Yellow diarrhea sucks. Taking probiotics and enzymes. No change. Had to quit the metronidazole my Dr prescribed due to horrific side effects after 3 pills. Very disappointed. sad

    • hank66528
      hank66528 madylon79184

      Posted

      I was on antibiotics for a spell this winter when I had a sinus infection.  But all of this started like a month or two after.  The weight loss is the scary part and they are talking about getting checked for cancer and stuff.  Scary.  They tried me on a couple meds since and nothing is giving me relief.  I hope they find out what is wrong soon.  This is literally ruining my life at the moment.  I hope you find answers soon too 
    • madylon79184
      madylon79184 hank66528

      Posted

      My friend mentioned leaky gut could be possible for symptoms because of the white tongue . She goes to a naturopath and said I should mention that to my Dr. It can start with antibiotics and leads to an overgrowth of yeast and bacteria. My an biotic use 6 weeks ago was Augmentin for sinus. Might be worth exploring.

  • madylon79184
    madylon79184 hank66528

    Posted

    Hank, I also have a white tongue and very thirsty, parched mouth. The metronidazole was for a suspected antibiotic related diarrhea and possible parasites but no tests were done. I am bummed sad
  • rob2000
    rob2000 hank66528

    Posted

    Just reading your post and that pretty much happened to me after i had some stomach viral infection that really messed me up for over a year and a half and I still have mild ibs now. I lost loads of weight, had bad pain, gas, trouble breathing, trouble digesting foods and a white tongue with a dry mouth.

    I found following the fodmap diet really helped but it took some time as i was pretty messed up, but this is also a guide as some foods on there did not agree with me. I found my white tongue got worse if I ate anything which wasn't on the fodmap, so baked beans, peas, gave me loads of gas and it would feel like it was pushing up and coming out of the mouth, strange I know but this seemed to cause the breathing issues. I remember one night I woke up choking and remember I had eaten some vegetables which were not on the fodmap diet. Also eating meat sometimes was hard as I had trouble digesting it and had to take digestive enzymes to help. 

    They put me on anti acids which helped for a couple of months but this made my tongue much worse, so they suspected a gut dysbiosis/possible Sibo in the end which would hopefully sort itself out. I started taking probiotics and following a strict diet which 3 months later really improved everything. The white tongue was bacteria as I was tested for fungi, so this also pointed towards an overgrowth of bad bacteria. 

    ?Stools also can change day to day which doesn't mean anything bad, sometimes mushy, rock hard or nothing at all, which can also cause hemorrhoids if you are constipated and leave blood as you wipe. 

    It could be a combination of gerd/ ibs but I am not a Dr and it is worth getting more tests to be sure as forums can only give you some advice and personal experiences. 

    • hank66528
      hank66528 rob2000

      Posted

      Yeah man I am getting tests done and ttrying to figure it all out....  You said you lost a lot of weight??  How much and how soon??  40 pounds in two months is crazy to me.  It also came with some extreme anxiety and panic....  I want it to just go away and I wanna feel normal again.  Its getting to the point that Im afraid to eat anything.  I tried the fodmap diet for about a month.   Thought it was helping but then all the symptoms came back.  So they told me to eat what I wanted since it seemed everything was giving me trouble and in hopes that that would help me put back on some weight.   But now Im back to mainly fodmap because the rush of stuff back into my system seemed to mess me up more
    • rob2000
      rob2000 hank66528

      Posted

      Similar amount of weight loss to you and I could see undigested food when I went to the toilet. I was panicking a fair bit and had ultrasounds, endoscopy, blood tests etc but nothing was found. Was on omeprazole for about 4 months which stopped a lot of the pain in the guts by reducing the acid running through the intestines and then also a restricted fodmap diet. I am still on fodmap now 2 years later so it can be a long term thing. I had to go to physiotherapy to build my muscle back up as I lost so much weight. I wish I had gone on the Fodmap diet earlier but a dietician told me to do it as the Dr didn't really help much. 

    • hank66528
      hank66528 rob2000

      Posted

      Well that's crazy man that you lost the amount of weight I have.  Its scary as hell.  Not knowing whats going on I think is what is causing most of my problem with the anxiety and stress.  I am back on the fodmap and the same with me man the dietician Im seeing is the one that put me on it to begin with.  they did have me on omeprazole in the beginning but I didn't feel that I had a lot of heartburn and asked to be taking off it.  I have only one kidney that functions and had heard that those and stuff like ibuprofen are not good for the kidney.  I hope I can find answers soon.  The weird thing is that my nutrionalist also had a food sensitivity test done on me.  The only food that I am supposedly sensitive to is cinnamon.  I don't know man its so confusing 

    • rob2000
      rob2000 hank66528

      Posted

      Yeah it is difficult and sometimes I just had to figure it all out myself and what worked for me. Hope you get it sorted and it improves. 
  • pippa58442
    pippa58442 hank66528

    Posted

    Sounds very like IBS; Weight loss can be caused by anxiety.  While Fodmap helps mant people, it doesn’t always help everyone.  The redness in your intestine found by the endoscopy could be gastritis as well.  Blood in your stool may be due to a haemorrhod or fissure especially if it is bright red and you have had a haemorrhod before.  Try a stool softener or lots of fruit to make stools easier to pass so you don’t have strain as much,  Try a food diary to see if that uncovers any food triggers.  Try distraction techniques such as light exercise such as walking and focus on your hobbies.  This will help you to relax.  Anxiety will make your symptoms worse.
    • hank66528
      hank66528 pippa58442

      Posted

      Yeah I agree the anxiety definitely makes it worse.  But not knowing what is going on and the fact that they are throwing the word cancer around makes me really nervous and makes the anxiety stay.  I think once I get some answers maybe the anxiety will subside 
    • pippa58442
      pippa58442 hank66528

      Posted

      Getting a diagnosis cured my anxiety and got my symptoms under control. 
    • pippa58442
      pippa58442 hank66528

      Posted

      You will get a diagnosis in the end even if it appears to be very far away at the moment. I despaired of a diagnosis after three and a half months of no help.  Even my brother who is a doctor told me to prepare myself for never being diagnosed.  I steadfastly refused to accept this and in my darkest moment of despair, I got diagnosed with IBS.
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