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Hello, my name is Alison.
Ive just been diagnosed with Chiari Type 1. I've been diagnosed previously with ME/CFS and fibromyalgia for the past 20 years (I'm 40, single mother of 1 9yr old beautiful boy)
My symptoms after a bad fall down some stairs last year, then a very bad flu at Christmas made me feel like I had MS, so finally had an MRI.
Up until then, I was a very fit person who fought all the low lying symptoms with cycling and bloody mindedness, now I can't cross a road without feeling nervous
I'm not too sure what to ask... And have been trying to get on with life, but I'm feeling alone and scared, despite reading alot of information and telling myself it's not that bad and it could be worse!
My employers have said if I have surgery it would be "elective" which leads me to believe non-sufferes see this as something you can put up with without surgery! I'm having various central nervous issues and in my heart think surgery would prevent this getting worse? Is this true?
I'm currently reffered to a Neurosurgeon at Salford Royal... Does anyone have any experience here??
Sorry to say hello in such a way... I hope whoever reads this is doing well and having a good day! The sun is shining here!
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