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Need some advise about symptoms

Posted , 2 users are following.

youngatheart1
youngatheart1

Hi, I have diverticular and recently had a flare up, this time though the symptoms are different and more like those you would ld ld ldn k'p

1 like, 10 replies

10 Replies

  • youngatheart1
    youngatheart1

    Posted

    Hi sorry computer froze, what I mean is my symptoms have been different, more like those this pancreas problems,my urine is sometimes bright yellow but 2 dips at GP found nothing, an ultrasound of abdomen found nothing, although I am a bit podgy around middle so not sure if the result was fudged due to this. I have a stinging pain on left hand side around base of ribs, around into back, but mainly front, the skin is sore to touch in that area. It moves to the same spot on the right and is there at the time at left and goes all over stomach area, but mainly up and down left side. My poo is brown but when wipe the paper shows a slight orange shade (TMI sorry) and I can see yellow flecks on white of eyes but GP said not jaundice. All bloods come back fine, LFT came back fine so no bilirubin. Having hot flushes and just generally feel unwell. Temperature ok, I am due to see GP again tomorrow but feel like we are hitting a brick wall and everything is IBS or diverticular. Does any of this sound like symptoms you have had and been diagnosed with pancreas problems. I am 56 female, non smoker, hardly drink, no diabetes but scared that I have cancer of some sort and the GP's are missing it. Sorry to be so dramatic but fed up with feeling unwell.
    • manda1030
      manda1030 youngatheart1

      Posted

      First I want to say I am sorry you are feeling so bad. I have had Chronic Pancreatitis for 15 years . I turned 40 last month. It took them till 6 years ago to figure it out. I throw up a lot. Have light colored stool and pain almost a ways in the middle to left side into my back. I am always tired. I have trouble with low blood pressure and fainting. Dehydration and can not produce enzymes. I also have stone calcifications. I am not complaining just giving you examples of what to watch for. Don't give up go to a GI with good creditals in the pancreas as pancreatitis can be hard to detect. Best of luck to you. Let us know what happens.
    • nataliefranc
      nataliefranc manda1030

      Posted

      Hi can I ask why it took so long to detect? Did they not do the right tests or did nothing show on scans? Just I've been suffering 6 years and ct, MRI, stool tests and blood tests all clear. I'm finding it hard to believe that it's 'just' ibs
    • youngatheart1
      youngatheart1 manda1030

      Posted

      Hi Manda you are certainly having a rough time, I have been having various symptoms on and off for years now, according to GP's I have GERD, IBS, Diverticular and all the symptoms I am having on top. I am lucky that I am not sick, my stools are a brown colour but sometimes a bit orangy and my urine is dark sometimes too, which are the symptoms that I read about along with left sided pain as a possibility for pancreatic problems. I hate that you can google everything as it all leads to cancer. I know I should be strong enough not to look and am usually good but over the weekend with this pain have looked at every possibility. I will be seeing GP in the morning and am going to ask to be referred to GI so that I do not keep having test after test with no results. Hopefully might get some answers. Take care
    • youngatheart1
      youngatheart1 nataliefranc

      Posted

      Hi Natalie, me too, I was diagnosed with IBS at 15, now 56 year old female. Diagnosed with diverticular last year when I refused to accept IBS, good job I had an endoscopy which showed the pouches as I now know what causes the diarrhea. I am going to ask for a consult tommorrow to a GI when I collect my latest abdomonal ulstrasound results, the lady doing the scan said she could see nothing, my bloods show nothing. I have not had a stool test or an MRI so will push for those. Will let you know how I get on.

    • nataliefranc
      nataliefranc youngatheart1

      Posted

      I've had every test imaginable except EUS! Not one thing shows! Good luck keep me updated
    • manda1030
      manda1030 nataliefranc

      Posted

      yes they did all kinds of scans and endocopy, colonoscopy, and a few I am not even sure what were. I went to 7 hospitals and many Dr.s before finally it showed up on an MRI. Why it took 6 years when I had already had several done I don't know. Don't give up Natalie! they have to figure this out. go to endroconoligist and Internal medicine Dr.s as well a regular ER doctor caught mine.... Best of luck! hope you can still smile.
    • manda1030
      manda1030 youngatheart1

      Posted

      Thank you for your kind words. I really hope you find the answers you seek. When my journey with all of this started 15 years ago I am 40 now...anyway I was told many of the same things you have been told. if you don't get the answer from this Dr. keep going till you figure it out. i am smiling through the pain and wishing all of you the very best in a happy life and well being.
    • nataliefranc
      nataliefranc manda1030

      Posted

      Thank you it's scary that it can take so long to diagnose and even more scary that docs don't seem to realise this! I've been referred back to gastro specialist for the third time now! I'm hoping that as I continued to drink for the first 5 years of this as I didn't relate the pain to alcohol until recently that some scarring would of shown by now or I'd of at least of had an acute attack or some more symptoms would be present. All I have is location of pain and the fact alcohol makes it worse. My stools are Normal, more constipated than soft and never oily or pale. I don't get pain or trouble after fatty food. I'm hoping I don't have cp and it's gastritis or ibs as I keep being told but I can't help but worry about cp constantly!!
  • manda1030
    manda1030 youngatheart1

    Posted

    I am sorry you are going through so much. It is scary to not know what is going on with your body, I was told I had gerid, galbladder trouble, gastritis which

    ​I do as it turns out also. the CP is so much worse though. I hope there will be more funding for research soon. I too did not realize what was going on and drank till 11 years ago. If Dr.s would have found it earlier I wouldn't be in the mess I am in. I can not blame them though for me not taking better of myself. I do try to live life as full as I can now and try to take nothing forgranted. I feel blessed for each day good or bad. I really hope you do not have CP. I hope you feel better soon.

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