Need some helpful guidance

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I'm due another B12  shot, and started feeling bit light headed, with a "can't be bothered " attitude to most things, which thinking back over the 18 months that I been found out, i would like a blood test to find out if I am ,any better, or worse, or short of anything else  I have asked the doctor  and,the nurse about this ,but just keep getting fobbed off ,They throw numbers and counts at me ,which mean precisely nothing. Can I insist on having a blood test, to know where I am with this body of mine . condition.wise,  

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  • Posted

    just noticed that I have written some nonsense, so ,here to correct it !!!!! The pre B12 injection feelings have been the same ,before and after ,but more persistent before I started the injections 18 months ago. In all honesty  they don't make me feel a lot better, but the tiredness and swimmy head do become more noticeable  ,so the injection must be pepping me up a tad. In bed now, feeling sorry for myself, 

    Think that hugs should be on prescription !!!!!rolleyes 

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  • Posted

    * Free hug! Sounds to me like you need more frequent injections, which if you're with the NHS is very unlikely to happen, if you can 'take the plunge' as it were and give your self an extra injection in between your appointments I bet you'd start to feel even better. Blood results will always show high blood serum levels of B12 as you are receiving injections, the amount of B12 in your blood means almost nothing, what matters is what your absorbing on a cellular level so don't worry too much about getting the blood tests for b12 levels, your doctor will say it's normal or high and say your fine. I self inject and most of my physical symptoms have gone (apart from memory loss and hair loss which may or may not be totally related to my deficiency) and I recommend that if you can, give yourself an extra shot. See my profile there's a link on where I buy mine, I won't put in reply as not sure if we're allowed to add links smile 

    Sue

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    • Posted

      Hello at last,,, I have been made to sit on the naughty step by management ,for some  thing. , I see you have no time for a quick hug ????   I too am having memory loss, not a lot,,, what I had for dinner yesterday !!!! and words Didn't know if this was due to the lack of or due to B 12.. I also have found my hair thinning . so annoying.. again,, age or  B 12  Your extra shots sound useful,, where do you get them from ??? Please don't say the internet ,,, I have decided to increase my intake of fish, I do eat a lot of that ,dairy, I also eat a lot of cheese, butter .eggs, Read that beef should be included ,but can't do that.!!! Eat chicken .pork,so,, that is obviously not true,, in my case. There are only so many meals you can plough through in a day .I also endure Diverticulitis ,with a really unforgiving menu,  which cancels out the B 12  menu. Still  I battle on ,but I was told  that i had inflammation of my blood,and not a lot of answers given about it, Whether it was an add on to the Lack of  B 12 or something extra to worry about ,Do you have any info on this.

      You can always send a private message ,   

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    • Posted

      HI yes I meant *quick hug!

      I'd say by inflammation in your blood they mean you had high markers of inflammation, such as high C-Reactive Protein, this goes hand in hand with B12 deficiency so if you can get a handle on that you can improve the inflammation markers. I also suffer with IBS, any gut dysfunction compounds the little B12 you can absorb by food as well. Ah sorry I do get my B12 online! it's the only way as you can't purchase it OTC, as mentioned the website is in my profile, if you click on my name it says where I get it. I use it once every 2 weeks and initially did a full 10 days daily injection when I first started, my symptoms also worsened for a short time before they improved which I've read is not uncommon. So be wary for things feeling worse before they get better if you up your injections, it only lasted a couple of weeks for me and then I started to feel less physical symptoms - burning feet, sharp pains in nerves in thighs and muscle pain, lack of response when I wanted to use my hands for dexterous things, these all got a bit worse and now these symptoms have disappeared 95% for me. Don't forget to supplement with Folate (Folic Acid) with B12 as it depletes with use of B12. Hopefully your doctor will have prescribed you some Folic Acid tablets, if not do ask for some smile

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    • Posted

      Gosh,,, I don't have any of your probs...Which does ,in a back handed way make me feel a tad Better. I do take supplements... boring bit now !!!! calcium---- magnesium---vit D 3 --- selenium with Zinc,,, and Acidophilus  to keep my diverticulitis  happy. I suppose being a qualified wrinkly ,makes me a prime target for incurables, last count,, I have four and a few odd things thrown in . I usually wake up in the morning, wondering which bit is going to hurt today..rolleyes frown biggrin

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  • Posted

    Hey, glad to be here! I've had a rough time with health this year, worst ever in fact, even though I was so good and finally gave up my 25 year smoking habit my health only seem to get worse! I do feel like I've had a major find with discovering my b12 deficiency, it explained a lot. I also take probiotics and zinc, I have magnesium but the tablets are so ginormous I often just don't take them! I should though. Hang in there! xxx

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    • Posted

      Hi,,,had to laugh at the size prob with the Magnesium size. I take 2 every day ,breakfast and dinner .The Calcium come in a close runner in size.TAKE THE MAGNESIUM !!!!! they really are good '''cos they work in tandem with the B 12 and the calcium, they are three good pals. I gave up smoking , instantly, because my consultant said if I didn't .I would die. Who can resist an offer like that. The daft thing is, now,, I can't stand the smell of them. Tried to do a bit of retail therapy today, but it just seems that nobody works, the traffic was thick, and parking  non existent. so I went home, had a mug of tea and a rather large cream cake,,, very satisfying.cheesygrin  did manage to get to my out of town H&B to stock up,, buy one get one for a penny ,, I really like this deal. Feel normal today, a friend rang three days ago, and said the usual "how are you " really good I said, then blow me a couple of hours later felt flattened, Put it down to my  b 12 being due.  Cold today, but nice, like it better than hot stuff, xxx 

       

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    • Posted

      Hi,, where are you ???Wotcha doin' ?? how is this for nonsense ... Phoned the surgery,  said I was having  B 12 on the 4th, and could the nurse take a blood sample at the same time, to save time. No was the answer ,see what the nurse  says, and if she THE NURSE !!! thinks I need one ,she will ask the doctor.  Words, fail me .which is unusual, but such protocol, and red tape could leave a pile of dead bodies .

      I went to live in Southern Ireland for 15 years, where the Health service was first class +, I was looked after with speed, and expertise and felt very safe, I returned here to take care of my mother, and my health has gone down hill from then on ,by incompetence, rudeness ,and carelessness. to such an extent that I am afraid to go to hospital ,hence the mineral and vitamin usage. 

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  • Posted

    It is also important that your Folate level is monitored as this is essential to process the B12.

    There is a complex interaction between folic acid, vitamin B12 and iron. A deficiency of one may be "masked" by excess of another so the three must always be in balance.

    Symptoms of a folate deficiency can include:

    symptoms related to anaemia

    reduced sense of taste

    diarrhoea

    numbness and tingling in the feet and hands

    muscle weakness

    depression

    Folic acid works closely with vitamin B12 in making red blood cells and helps iron function properly in the body.

    It is not uncommon for some symptoms to appear to get worse before they get better as the B12 starts repairing the damage done to your nervous system and your brain starts getting multiple messages from part of the body it had "forgotten about" or lost contact with.

    I sometimes liken it to a badly tuned radio on which you have turned the volume up high trying to catch the programme you want when all of a sudden the signal comes in loud and clear and the blast nearly deafens you.

    A lot will depend on the severity and longevity of your B12 deficiency as to how long before there is no further improvement or recovery. Some symptoms will "disappear" quite quickly whereas others may take months or even years. There is no set timescale as we are all different.

    I'm not a medically trained person but I've had P.A. (a form of B12 deficiency) for over 45 years and I wish you well. 

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    • Posted

      Hello clive ,,forty five years , my sentence is only 18 months, and probably extending, i accepted it ,as I have to accept other incurables, that I seem prone to collect..having read about blood tests that happen to other people ,and not to me, I started wondering if I had a G.P who does, not bother with blood tests, or he is that good, he can see through my skin to check the state of my blood. As he casually mentioned ,when this "Thing" started ,that I had inflammation of the blood ,and one or two other bits that wasn't keeping the "Traffic flowing  , I thought it was not a serious  problem. so remained calm-ish, I do take herbal and vitamin supplements that I read would help, probably mind over matter, but I have a NO prescription drug rule, and no longer take them .apart from the B 12  Rightly or wrongly ,my health is good now that there are no side effects to combat. BUT ,,I would like a blood test to see if the inflammation has corrected itself, if only to keep my stress level down. I am due a shot on the 4th December, Shot being the operative word .I have to ask for a particular nurse to do it, as the other one is a qualified javelin thrower, who makes me yelp, leaves me with a bruise, and a swelling.

      I don't have any of the  symptoms you offer for the Folate  . 

      Is your life controlled by the lack of B 12 ? just read another article .that says eating more meat ,fish ,dairy , eggs ,put B 12 into your system  There's always someone ready to give forth, about what is good for us rolleyes  

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    • Posted

      I had two thirds of my stomach removed at the age of 17 due to a perforated peptic ulcer. Any gastric surgery can affect the ability to absorb B12 from food and this eventually led to my diagnosis of Pernicious Anaemia in 1972.

      In a normal healthy person the stomach lining has what are called "Gastric parietal cells" which produce "Intrinsic Factor" which travels with food through the small intestine which is made up of three parts - the Duodenum, the Jejunum and the Ileum..

      Iron is absorbed in the Duodenum, most other nutrients in the Jejunum and our friend B12 in the Ileum.

      Here the Intrinsic Factor binds to the B12 and the "B12/IF Complex" enters the cells on the wall of the Ileum after binding to receptors on the surface of the Ileal cells, allowing it to enter the blood stream.

      Sadly some people with "traditional P,A." either do not produce Intrinsic Factor or if they do,they also produce an antibody which destroys it and it is then called "Autoimmune Pernicious Anaemia".

      In addition it can happen that we produce "Parietal cell Antibodies" and "Intrinsic Factor Antibodies" which totally wipes out any chance of absorbing the B12.

      My doctor  when she knew the diagnosis asked whether I wanted the good news or the bad news. I asked for the bad news and she said I had two years to live..  

      Here I was a 30 year old married man with two daughters under six and a wife with heart problems - so what's the good news?

      She said I wouldn't die within two years if a) I ate raw liver three times a day or b) had injections of cyanaocobamalin B12 injections every four weeks for the rest of my life.

      I chose to have the injections.... smile

      Sadly my above doctor died on 4th November and I attended her funeral service on Wednesday together with upwards of 200 others. She left general practice in the mid late seventies specialised in psychiatry and became head of The Prison Service Psychiatric Unit looking after the welfare of prisoners. She was awarded the CB - Commander of the Order of the Bath - by the Queen for her Services to Medicine.

      Despite her high profile "job" she always lived locally.

      Dr. Rosemary Jane Wool (1935 - 2017) was a lovely lady who having "looked after" myself, my wife and girls asked to be allowed to play the organ for my younger daughter's wedding in 1988, writing to us afterwards to thank us for the privilege.

      You can imagine the wetness in my eyes on Wednesday as I thought back to that conversation all those years ago and yes. I'm still "clivealive" and now over 75. 

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    • Posted

      hi,, I have just spent half an hour ,probably more ,giving you my pain ,life story ,which They would not send, I sent another,, shorter one ,and that was also withheld ,,see how this one goes, Annoying to say the least
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    • Posted

      That is really annoying. 

      I've learned my lesson after having been moderated (and even reprimanded) on replies I have made in the past so now, if I think I may be blocked, I highlight my post by dragging the cursor from top to bottom, right click on the text and select "copy". Then if it is blocked I send a message by clicking on the envelope next to the person's name I'm replying to and paste the copied text into that.

      I will now do that with this reply. I'm always interested in reading of other's experiences.

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