need some independant advice

Posted , 4 users are following.

hello one and all,

I have read a good majority of the comments on this site and commend you all.

the purpose of this piece is to seek advice regarding perthes.

I am begining to understand the problems perthes has presented over the years, particularly with the recomended treatments and trends that as always happens, varies drastically. It is impossible to class any two \\patients the same, especially when you consider that the condition may not be fully understood in the medical world.

Therefore i seek all your views, from the people who have the experiance of perthes.

I am a qualified football coach who has to decide if a young boy, should play competitive football. Whilst the welbeing of the child is my first and foremost concern, i also understand the mental anquish that the child must be going through, I myself was diagnosed with spinal problems at a young age which put a stop to my promising sporting career.

the problem I have is simple, whilst a letter from a doctor exists, suggesting the the child should be encouraged to participate in sport and movement. This I am sure you can understand may not extend to competitive football. he does train with the rest of the team twice a week but the rest of the boys do not tackle heavy, they are very good in that respect. The child has very restrictive movement and I fear that a heavy tackle from an opponant may cause distress if not damage.

any advice, help, sharing experience would be very useful

many thanks

0 likes, 5 replies

5 Replies

  • Posted

    I think he'd rather do a hip in playing than watching from the side lines smile
  • Posted

    Hello Greg, I have just read your message and it made me think about me when I was that age. I was football daft and watched Hearts play football every week. I have Perthes disease and was told not to play contact sports from the age of 5. I still love football and played now and again from the age of 5 but as far as school went, no contact sports for me. I am now 30 and have no problems with my hip, I am not sure whether that has anything to do withe the lack of contact sports.

    If you can control the physical contact he endures then he should be much better with playing football. I understood early that I was limited in what I could do, hopefully he is understanding the condition too.

    I applaud you for taking the time to help another person, especially when they are young and in need of help.

    Best wishes.

  • Posted

    Hi Greg,

    My son was diagnosed with Perthes in his left hip five years ago at the age of almost ten. The onset of symptoms (unable to walk, extreme pain etc) began about a month after the end of our local Junior Rugby League season and he has not played a lot of sport since and definitely no contact sport at all.

    While his doctor/specialists diagnosed Perthes immediately and my son was told he could not play contact sports, tennis, soccer, run, ride a motorbike or horse etc, the main reason why he didn't take part in any of these actvities for a number of years was simply because he just couldn't.

    Getting up and walking to the toilet and even standing was beyond him at times, he spent many days over a period of three years doing his schoolwork from a bed we placed in our schoolroom (we live on an isolated cattle station in Queensland, Australia and so he has always done his schooling here at home through a School of Distance education/School of the Air anyway), found driving in our car extremely difficult and even gentle exercise in a dam or pool would see him bed-ridden for weeks at a time. Thankfully we were able to fill his life with many other activities over the years such as chess, musical instruments etc to replace the very active and outdoor life he'd previously led.

    I should mention that while he was prohibited from playing tennis, due to the impact on the court and his restricted movement, I did find a great coach who was happy to travel each month to our local area to provide one-on-one sessions that allowed my son to practice serving, forehand and backhand shots etc without having to move his feet at all. It was wonderful to see this man work with my son in this way and it gave back something to my son that I will never be able to thank him enough for. As a parent, I felt that even though he was unable to actually PLAY tennis just then, there was no good reason why he couldn't at least learn the basic skills, within his limits, and so could at least know HOW to play when he was physically more capable in later years - my son was happy enough with that and easily accepted that he could only do what he could do.

    In 2006, he played a few games of tennis for his school and even won a few singles and doubles matches - he was thrilled! He was in too much pain to play during 2007 but, in having a knowledge of the rules and skills involved, he knows that he can always participate if and when he can. The same was for cricket...on the very few occassions he was allowed to play for the school team (this only happened when they couldn't field a full side and would have had to forfeit without my son's presence), he could never bend down to retrieve a ball very quickly in the field and he needed a runner when at bat (he batted at number eleven), but by being able to attend and participate in practice sessions each week, he was able to learn the skills and finer points of the game so could partially participate when able and look to the future knowing that he would be 'in the know' if he was ever physically capable of playing to the fullest extent.

    It was hard for him to sit on the sidelines for many activities, especially as his younger brother continued to play rugby league, but he was able to help out with other aspects of the game (waterboy, canteen, helping the coach etc). The same was for athletics and swimming...being a track judge, timekeeper or giving out the ribbons was always an exciting and acceptable alternative.

    Now only a few days from fifteen, it has been hard slog for him but, while he is still not completely pain-free, he has been able to participate in Army Cadet activities in the last two years(he attends boarding school during the school term now that he is in Secondary) and it has been great for him and his confidence particularly as the Cadet staff allow him to perform to his own pain threshold/ability. They allow him to be a part of the organisation as they appreciate that while he is of

  • Posted

    Hello there,

    Can I ask you what the outcome was for the child you coach?

    My son is 6 and we are waiting for an official diagnoses but unfortunately pretty sure he has Perthes.

    Our concern is also his football. He plays for a local team and has also been scouted for a professional team, so he trains 3 times a week and has a match on a Sunday. His movement is not at this point very limited- he just does everything with a slight limp! It has slowed him down a little but his skills and aggression remain. We just don't want him to be doing any more damage to himself and although it would completely break his heart to stop I need to do what is best for him.

    Any help would be appreciated.

    Thanks

    Sarah

    • Posted

      Hi Sarah, my son was diagnosed with bilateral Perthes in April (then 6 years old) and had a femoral osteotomy in June. He had a slight limp after exercise (which doctor 1 thought was growing pains and doctor 2 thought was flat feet) and sometimes woke with pains in his feet. He was (& is) an extremely active and pain free child. I am also struggling to understand what activity should be restricted and if we need to suspend all physical activity for a period of time to give him a better chance of a good recovery. This is due to all the googling I've done and the worry activity will damage his hip!!! For me, the uncertainty of this condition is one of the biggest issues. Last week our consultant confirmed that as toms hip is " contained" with the surgery he can continue to play football. However the physio recommends football skills only to avoid any harsh contact to his hip. Net, I believe your answer will depend on (I) how contained the ball is within the socket and (Ii) the opinion of your doctor. Unfortunately from what I've seen even 2 consultants within  1 hospital can have differing opinions on what's best for Perthes. I'm sorry I can't provide an answer to you but wanted to share my experience as I haven't seen many posts about pain free children with this condition (even though It's still early days for us and I don't want to tempt fate). Good luck, Sarah x

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