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Need to contact TN And S U N A sufferers

Posted , 3 users are following.

angiegirl
angiegirl

i have a condition that is called S U N A for short it is very rare I am told that I am 1 in 10,000 people that could get it.   It is much worse than TN bot simular.      Can anybody help me locate any S U N A sufferers.    Or has anybody have any information about it. I am a patient at the UCLH.      

0 likes, 3 replies

3 Replies

  • gillian76726
    gillian76726 angiegirl

    Posted

    There is a,page for this which i believe you have already posted on. otherwise just Google the condition and forums as i am sure there will be some.,this,page is more for,people,with .vertigo related problems in the vestibular system.
    • angiegirl
      angiegirl gillian76726

      Posted

      I am trying everything as it is s o rare and I have not found anybody w it hit yet
  • rockymama
    rockymama angiegirl

    Posted

    I think if you google SUNA headache you will get a bunch of info and will find a discussion. Hope so. Best of luck.
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