need to have a moan (again)
Posted , 7 users are following.
hello, it's me moaning again, but it is only on here that anybody listens! very disappointed with my nhs help regarding my bronchiectasis, am finding it increasingly difficult to continue working manually for a living, due to the resulting pain and exhaustion felt the day after, my doctor will not let me sign off work on sick, enabling me to get some income however limited that may be. in the past week i have earned a whole £45. this has forced me to start selling some of my assets, little things one at a time to get a few bob. I have been backed into a corner like a trapped rat and I don't know where to turn, I am envious of you lovely people that have considerate sympathetic understanding doctors and consultants, sad or what? refused antibiotics last infection for example, they do not seem to comprehend that each untreated infection makes the next one potentially that bit worse, and yes I am the only patient at this practise with this illness. changing doctor is'nt really an option due to my remote location, I can only bang my head against the proverbial brick wall for so long before something explodes....... any advice please? has anybody else had the same experience?
2 likes, 6 replies
cynthia61971 david_25160
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cofalot david_25160
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My heart goes out to you hun. As if bronch isn't bad enough to cope with, not having the correct treatment and support is totally unacceptable.
It seems to me your GP is really not up to speed on non cf bronch. If I remember rightly I put a link on your last post of the non cf bronch guidelines - seems like he/sdhe needs to read it.
What was his reasoning for a) not giving you abs for your infection and did he do a sputum sample? b) not allowing you to take time off sick when you clearly need to?
I appreciate you only have the one surgery but are there more than one docs there? There may be another who is more clued up on respiratory problems.
Have you contacted your consultant? I assume you have one -you should have.
You could speak to the nurses at the British Lung Foundation. I can't remember the number off the top of my head but I will get it for you or if you are a member of healthunlocked/blf you can get the no by clicking on the red balloon at the top of the page. Will find it for you though.
You can't carry on selling stuff off. This is all really bad for your wellbeing as well as your health.
Please let us know how you get on.
Good luck.
cx
cofalot david_25160
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cofalot x
trish40354 david_25160
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Your doctor sounds absolutely useless! You should have antibiotics at home on standby so you can start these immediately you feel an infection coming on! You need to provide a sample of sputum to have this checked at the hospital to see what the bacteria is to enable the antibiotic to be changed if necessary. Your doctor should know this!
All in all you are getting no help or support which is awful!
I would contact your consultant and explain your situation and see if he is willing to write to your doctor.
I have a respiratory nurse I can e-mail or ring connected with the hospital so I am very lucky in that respect.
Hope things improve for you very soon.
murphs david_25160
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jeannie4243 david_25160
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