Need your thoughts please. Scared of possible CP

I'm so glad i found this post! I'm new to this and very scared. I am a 38 y/o female that has had an onset of very strange symptoms. I initially thought i was having a latent allergic response to red sauce. S/s: out of nowhere I will feel like im going to pass out, get diaphoretic, lose all my color- literally turn yellow like syncope... and have projectile vomiting/diarrhea... these episodes can last anywhere from 40 minutes to several hours. The last several episodes also brought along severe itching- like the first time with itching it was my scalp. More recently its been my hands and feet. I initially thought I must be having an allergic reaction- and its getting worse. My NP thought it sounded like GI anaphalaxis. I chose to go to an allergist because it seemed to always happen 24 hours after eating a red sauce. The allergist was quick to shoot that down, no doubtedly telling me I had carcinoid syndrome- and sending me to a GI doc. He said because I had flushing in my hands and feet- not hives, this was a concern. I went to the GI doc the next day. I had a colonoscopy/endoscopy they said looked great except for a growth outside the major pappila- (doudenoum). The doc that performed the E/C said it looks like a lipoma but my ordering doc may want to get a closer look. Sure enough, he did. Due to having such weird symptoms he said he needs to do a EUS- that obviously a lipoma doesnt come with s/s. Ive had tons of labs all coming back normal, including 24 hour urine/stool sample, pancreatic and bile labs. The concern of course is the ampulla of vader. Also where the growth correlates with. I have my EUS with biopsy scheduled this upcoming Friday and need all the good vibes and prayers. I have a 4 y/o little girl that needs her mommy. My BM's have changed this past year going from very constipated to loose stool... the sudden attacks with avengence are something entirely different, all together.

Hi Everyone I'm a 37 male who's had issues for 2 years plus now constant ache pain in my lhs around my ribs and side and back area this is nearly constant soon as I wake up it's there and until I'm asleep even wakes me up in the night my stools are always yellow or orange and food seem to be undigested in them often and goes thru me quickly if I drink alcohol agian j need to go asap often and the next day the pain is always worse I've had ultrasound CT scan bloods and colonoscopy all normal just thickening of terminal ileum which could indicate chrons but docs say I don't have that I've also have blood in stools sometimes so having another colo soon but I don't believe it's my bowel as pain is high up for it imo the bleeding could be my diverticulitis which I have diagnosed since the last colo but that wouldn't call these issues. I'm really fed up mentally and pain wise now I don't know what else to do I suspect CP which the docs say I done have I really don't know where to turn I've a young family I love and just want a normal life this is so bad I feel all you're pain on this thread is they any advice anyone can give it's much appreciated thanks Mike

I had almost the same chair. later, when I began to be examined, I found a lowered ceruloplasmin and increased copper in daily urine. As I understand it, I have Wilson's disease, which manifested itself with such unusual symptoms. In general, I recommend that you get tested for ceruloplasmin and copper in daily urine, and in general, study your liver better, because it can give such symptoms ...

Get your fecal fat checked. After all my diagnostic tests came back normal, my GI Doc finally ordered a fecal fat study. Sure enough I had an over abundance of undigested fat in my poop.

It was then that I was officially diagnosed with exocrine pancreatic insufficiency.

good luck.

Hi Alex,

did you ever get this figured out? I am 37 years old and through the last 1-2 months, I have been experiecing the same, though without notable weight loss.

My stools are almost always yellow and going from firm to only a bit loose, pain left and right side of upper abdomen and also morbus becterew and sarcoidosis stage 1 diagnosed one year ago. Back then, I was ct and mr scanned a couple of times to confirm both and also a broncoscopy (lungs with camera and biopsy of lymphnodes, which showed granulomas in 2 of 4 nodes.)

Recently I've been through gastroskopi (same word in english?) where they checked my stomach and duedom, apparently with biopsy, which came back perfectly normal. I have also been through colonoscopy with only a peek view into small intestins (illeum I think its called) with biopsy, which all looked fine.

I had one acute trip to hospital about a month ago, due to massive pain in abdomen, where they checked my blood, which came back with a crp of 49 (usually I am at 8-12 on crp, maybe because of MB and sarcoidosis) and my usual low lymphocyte b of 0,48 (always too low) and monocytes of 0,88 (my monocyte is usually within the 0,20-0,70 range). They gave me morphine, let me stay at the hospital over night and released me the day after (had no pain the day after). A surgeon tried pressing my abdomen, which was and is a bit tender, with slight radiation to my back.

My abdomen pain is worse when lying, but when walking around I get these spikes/stabbing/shooting pains from the abdomen. However, eating doesnt seem to affect the pain much if at all.

Blood work when hospitalized was: P amylase is 22 u/l, alat is 15 u/l, bilirubins 12 umol/L, fosfatase 59 u/l amd calcium 2,21 mmol/L

I cant figure it out. I feel convinced its to do with my pancreas and I am so scared it might be pancreas cancer. No jaundice yet though. Oh and recently a blood clot in my left leg (only in surface and in varicose veins). Currently using huridoid creme on day 2 of that.

I also have the feeling of a lumb in my throat and occassional burning feeling behind my chestbone and random pains around my chest mosty when taking deep breaths.

Hey Alex, ive had every last test youve mentioned with these exact symptoms. you havent updated in awhile. This post has been the closest ive related to anything i read or been told the past year. Looks like a update could potientally help alot of people including myself! I really hope you see this as I am stuggling to get my life back. thanks!

Almost identical symptoms here, started suddenly and now is persistent dull aches in rib and back, same stools, issues eating, keep losing weight and no one knows why. Are there any updates? For me this started 3 months ago I am down 30 pounds and cant stand to lose much more!