Needed advice on lack of support from my doctors

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In September of 2012 I had some sort of viral, bacterial infection for 10 days, I was very poorly and in bed for 6 days. Before this episode I'd been treated for a number of years for an anxiety and depressive disorder and suffered from severe fatigue and unable to do everyday tasks. After the viral infection I was having vomiting episodes so severe that I ruptured myself and ended up with a hiatal hernia and a inguinal hernia. After the viral infection I went to the doctors, they were dismissive and said it was anxiety related, I was also by this time suffering with severe joint and muscle pain, extreme exhaustion after any kind of physical activity, even cleaning. After going on at the doctor for 4 months they actually did some tests, quite a few and all came back negative except for a vitamin d deficiency. I also had my first physical examination and that's when they discovered the inguinal hernia. Had the op in the July so that's 10 months after the virus. I was also not eating well and suffering from acid and burning in my chest, again after going on for two months, I had a endoscopic examination and that's when a 3 cm sliding hiatal hernia was diagnosed. I have been to the doctor a number of times since, trying to find out the cause of this what feels like nerve pain, joint and muscle pain, headaches, aching hands, feet, knees, forgetting things, needing to go to bed after any activity, very lethargic and numbness and tingling in my hands. I saw the doctor in November only this time I was more vocal, she said there was nothing she could do and that my symptoms were probably all anxiety related. I have also been diagnosed with ibs. My life is a mess, I have difficulty leading a normal existence, I am in constant pain that comes and goes for no reason, temperature changes affect me, any physical exertion affects me. Now I know depression and anxiety have similar symptoms in extreme cases, however I want to do things, that is not the same as depression but I physically can't. I have been advised from friends and family members that they all think it's possible I have CFS/ME or even fibromyalgia, the blood tests I had included one to check for joint inflammation, negative and yet I feel like I've got some sort of arthritic pain. Please can someone tell me how I get some help or advice, in order that I might get at least a proper diagnosis or someone might actually listen to me for a change, this will be two years in September where I have basically been told it's all in my head, it isn't, it's different.

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    Hey, Gary. I'm so sorry you're going through all this. I've had CFS/ME for years, and I'd be very surprised if you do not also have this illness. I have symptoms that are almost identical to yours, and I was diagnosed by a specialist at UCLA. I have nerve issues, like numbness and tingling, etc., in feet, legs, and sometimes in hands. Really, all the symptoms you've listed can happen with this illness, including anxiety and depression, sensitivity to temperature, cognitive provlems, sleep problems, digestive issues, and of course, postexertional fatigue. Don't believe any doctor who says this results from anxiety. When I first became ill, my primary care doctor, who'd I'd been seeing for several years,  did blood test and everything came back negative. I asked him if I might have CFS, and he said I just needed to get away (in other words, it was all in my head). I knew he was wrong, went to UCLA, and got a diagnossis immediately. You need to see a doctor who will listen to you and take you seriously! If you're in the UK, the NHS should offer some options. I believe there's greater awarenes of CFS/ME in the UK. In the U.S., there are specialists who can help. You can go online and google "chronic fatigue syndrome doctors."

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