Needing a little advise please xx

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Hiya Ive recently been told I have Graves disease (overactive) I went the doctors with weight loss, shaky hands, extreme tiredness, hair loss and a few more symptoms. I have been on carbizomole for around 3 weeks. Hand tremers has stopped and racing heart has stopped also the thing is now before treating my periods where irreguar sometimes coming every 5 weeks then every 3 and so on they where also very light, this period im having now has lasted 3 weeks its not heavy its just there TMI but its not red in colour either just brown and light still, I thought underactive thyriod caused long periods or can overactive also? Anybody had similar experinace? Thanks for any advice.

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8 Replies

  • Posted

    Hi Jennifer,

    I can't comment from experience as I was menopausal when my Graves started but the endocrine system is very sensitive and I would think any hormones could be affected. What I would suggest though is to always get a copy of your actual lab report of blood tests, especially your thyroid tests as this will empower you to make the right decisions for yourself. Always ask for a copy when you get blood work done and build your own personal health file. This will also help you if you need to get a gynecological opinion as he will be able to see how your thryoid is doing and how it might be affecting your periods. I would not be too concerned as you will have to see how it goes after a couple of more cycles. If it persists, ask your doc to refer you for a gynecological opinion.

    • Posted

      Thank you Linda, I have an appointment again on the 1st September follow up with my Graves I will ask there also, I can remember reading about I can request a copy of blood work, will my own doctor have these on recorded do you know 
    • Posted

      Your GP may or may not. Usually you need a referral to see a specialist and the specialist writes a note back to the referring physician. The specialist may have included the lab results in a letter format to your doc but it is always good to get the copy from the ordering doc as the actual report because then it has that lab's norms for whatever test is ordered beside your actual results.
  • Posted

    You definitely want to see a board certified endocrinologist. What were the results of the antibodies tests? [Hopefully your doctor ran these in order to arrive at a diagnosis.]
  • Posted

    Hi Jennifer.

    I have hyperthyroidism. I have only been on medication for 10 days and take a beta blocker.. No relief yet ... Real tired , no energy and nausea . I have had irregular periods but not as long as yours . Everybody is so different ... It's hard to

    Figure out ... Hope you get relief soon. Audrey

  • Posted

    Hi Jennifer,

    I was diagnosed with Graves just under a year ago with very similar symptoms to you.  I had been told a few years ago that I was perimenopausal (I was only 37 at the time) and my periods had been going strange for a while before I got Graves.  They still continue to be weird.  When I spoke to my endocrinologist about it she said that the periods should stabilise once my levels were back to normal but they haven't and I recently went 3 months without one followed by a very heavy and lengthy one.  I remain convinced that the Graves Disease, in my case certainly, is linked to menopause.  I only know of one other person in my social circle who has had an overactive thyroid and she was told that it was almost certainly linked to her menopause (this was nearly 20 years ago and hers has never flared up again).  My endo could not give any other reason for Graves to start except she said that in her experience it sometimes started after periods of intense stress or grief, neither of which applied to me at the time I was diagnosed.  

    I still believe that no-one really knows what causes it and the doctors just seem focused on getting your blood levels 'normal' and don't really understand or care about any other side effects you may be feeling.

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