Nephrotic Syndrome for my Mother... Need advise

Thanks Vallerie. My mother was administered with Prednisolone for one week and its better now after 2 days of consumption. My worry is how long this has to be taken. My inference on this sudden cause of this disease was due to intake of some ayurvedic medicine to boost her immunity.

So intake of this prednisolone will make her better after few days or does she needs to take this for a prolonged period.

Do we need to worry about any thing on her creatinine level now?

Please advise?

-Prasanna.K

Hi. Every case is different. When my grandson is weaned off his medication, he is well for some time. sometimes as long as12 months. However, he has an extreme case, and has to take a low dosage every other day. Once your mother is in remission, she should check her protein level every few days, just to be sure. If she sees a sudden rise, then she will need to go back on the Prednisalone. I am not sure I understand what you mean by creatinine levels. I hope this is of some help.

Thanks valerie for your time. Today we checked her protein level still we see 4+, so we are going to consult our doctor. One more thing we see her blood urea level has raised a little. Is it the case that happens normally or is it something we need to worry about.

-Prasanna.K

Hi Prasanna K

i think you are right in seeing your doctor about your mother's levels. Whenever there is a rise, it must be addressed. Also the blood urea level should be mentioned to him. It may relate to other issues going on that also need to be dealt with. I hope all goes well with her. My best wishes,

Valerie x

Thanks valerie for your healthy words. Yes we consulted the doctor and he said it would take atleast 4- 8 weeks to get the protein level under control. Also he said due to the drug  prednisolone it would have blood urea raisen. And nothing to worry about.

I am hoping for good sign this week test.

-Prasanna.K

Your doctor seems to be keeping everything under control thank goodness. I will keep my fingers crossed for you both. With any luck, we may even have a little sunshine!

Best wishes

Valerie

Valerie,

We visited doctor today and he has prescribed Telmisartan in addition to prednisolone. Any idea on this. I see this is ARB in the internet.

-Prasanna.K

Prasanna 

i have not heard of that medication, but it may be specific to your mother's condition. May be worth researching it on the Internet?

Valerie

Hi Valerie. Just a query about fluid intake while on prednisone. My Dr hasn't advised but I note you say to restrict fluids. I'm worried about side effects of the dreaded pred but some advice on the net is to drink lots of water. Of course some people take it for conditions other than kidney so maybe fluid isn't a problem for them. Would you say cut down on liquid. I have frusemide too but it's not v effective. Also worried about weight gain. 😞 Any advice?

Many thanks

Hi Eva

First the weight gain. From my experience with my grandson, the weight is a problem while he is on the steroid. However, in his case, once he has been reducing the dosage for a while, the weight seems to gradually come down. It does take time though and I do know he is acutely aware of it, though he never mentions it. He always avoids family photo sessions at this time! As for the intake of fluid. As you say, perhaps it is different is some cases. He was advised not to drink too much because of the fluid retention. Best ask your GP for your particular case. Good luck.

Thanks Valerie. It's early days for me so I'm wary and just want to keep my job going whilst on the treatment ( adult onset MCD) I hope your grandson improves. Young people can grow out of things so don't give up hope. I know you're advising him on diet so that can only help. Best wishes

Eva

All I can say is that I TRY to advise him! He is 19 now and is determined to live normally, without his friends knowing of his problem. That probably means eating the wrong things when they are out together!! Fortunately, he eats healthily at home and with us. I guess that is all you can do really. Best wishes. 

I've been researching on line at avoiding weight gain whilst on the dreaded pred. There's a lot of evidence for the effectiveness of low carb diets as the affected metabolism can't cope v well with carbs whilst on pred. I'm going to try it. I'm already trying gluten free which means I don't eat as many carbs anyway. I think when you're 19 though that's not much fun! I can remember some of the rubbish I ate at that age when Vesta meals were considered exotic!